Join our online community

The Online Community understands what it’s like to have Neuroendocrine Cancer.

Our Facebook groups are private groups and have been established to provide a safe place for those affected by Neuroendocrine Cancer to chat, talk and help each other by sharing experiences and knowledge, to both give and receive advice, support and friendship.

These groups welcome anyone who currently has or has had Neuroendocrine Cancer (NET or NEC) and are also open to family members, friends and other caregivers of those diagnosed with Neuroendocrine Cancer. Though there are subtle differences between the pages, developed in response to our community’s wishes.

Neuroendocrine Cancers are a varied group of “equal opportunities” cancers – they can affect anyone, regardless of age, colour, sex, gender or spiritual belief. Therefore we would ask everyone joining the community here to respect each others differences – and appreciate your commonalities, what brings you together – something so much more than a diagnosis.

Subscribe to our mailing list and receive newsletters, general Neuroendocrine Cancer updates, details of our patient education events and volunteering opportunities.

Our Facebook Groups

Select the image to join the group.

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UK GROUP
Neuroendocrine Cancer UK Support Group

This group runs alongside our local & regional Natter Groups and is open to all affected by Neuroendocrine Cancer here in the UK.

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FAMILY & FRIENDS GROUP
Neuroendocrine Cancer Family & Friends Support Group

This group runs alongside the friends and friends Natter Group and is open to all family & friends of someone diagnosed with Neuroendocrine Cancer.

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INTERNATIONAL GROUP
Friends of Neuroendocrine Cancer UK

This group is open all affected by Neuroendocrine Cancer – wherever you may live.

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UK GROUP
High-Grade (G3 NET/NEC) Group

This group runs alongside our HGNC Natter Group and is open to all family & friends of someone diagnosed with High-Grade (Grade 3) Neuroendocrine Cancer.

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UK GROUP
Merkel Cell Carcinoma Group

This group runs alongside our MCC Natter Group and is open to all family & friends of someone diagnosed with Neuroendocrine Cancer of the Skin (MCC).

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UK GROUP
Lung / DIPNECH Group

This group runs alongside our Lung Natter Group and is open to all family & friends of someone diagnosed with Neuroendocrine Cancer of the Lung and/or DIPNECH.

Other associated Facebook Support Groups – Not run by Neuroendocrine Cancer UK:

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UNDER 50s
NETs Whippersnappers

A chance to share thoughts, research, get support, or just to chat with other ‘young’ Neuroendocrine Cancer patients (under 50’s). We also have our online NCUK Whippersnappers Natter Group.

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NORTHERN IRELAND GROUP
NI NET Natter-ers

“A dedicated chat group for Northern Ireland NET patients and their supporters”. We also have our online NCUK Whippersnappers Natter Group.

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SCOTTISH GROUP
NETs Scotland: The Ann Edgar Charitable Trust
One of the main aims of the Trust is to provide an opportunity for people to come together to support each other.

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INSULINOMA GROUP
Insulinoma

A rare type of functional neuroendocrine tumour. “This group is for individuals who have a definite diagnosis of an insulinoma”.

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LUNG GROUP
Lovable Lungoids

A US-based “patient-run group, offering support to all bronchial & lung NET /carcinoid cancer (aka Lungnoid) patients & the people who care about them. NB “not the appropriate group for NSCLC or SCLC patients”.