Supporting the

Neuroendocrine Cancer Community

NCUK Clinical Expert Advisory Panel

Our Clinical Expert Advisory Panel is a group of specialists from surgeons to dieticians, who all have a wealth of experience working with Neuroendocrine Tumours. Our advisors are on hand to answer any of your queries that we can’t answer for you immediately.

Specialist Dietitian

Liver, HPB and NET

Elizabeth has been working as a dietitian in the NHS since she qualified in 2009. She developed an interest in NETs when she started working as a specialist HPB dietitian at Addenbrooke’s Hospital in Cambridge in 2013. In 2017 she moved back to her home town of Birmingham, where she joined the liver, HPB and NET teams at the Queen Elizabeth Hospital Birmingham.

Active member of the Nutrition Interest Group of the Pancreatic Society of Great Britain and Ireland. She has a keen interest in the management of pancreatic exocrine insufficiency.

MD, PhD FACS FRCS FEBS

(Professor of Surgery and Chair in Endocrine Surgery)

Professor Frilling received her primary medical education in Germany. After her general surgical training she specialised in endocrine surgery, hepato-pancreato-biliary surgery and oncologic abdominal surgery. She has authored ~ 400 peer reviewed scientific and clinical papers and contributed to ~ 20 books on diverse subjects on endocrine and hepato-pancreato-biliary surgery.

She has received numerous awards including the von Langenbeck Price, the most prestigious Award of the German Surgical Society, The Endocrine Society and Pfizer, Inc. International Award for Excellence in Published Clinical Research, and the Eminent Scientist of the Year 2012 award.

Consultant Physician

(in Diabetes, Endocrinology and General Internal Medicine)

Dr Graveling is a Consultant Endocrinologist in Aberdeen Royal Infirmary.  He is the sub-speciality lead for neuroendocrine and coordinates the local multidisciplinary team meeting.

CEO AMEND

(Association for Multiple Endocrine Neoplasia Disorders)

Jo is our Specialist Patient Advisor and runs the charity AMEND, which supports people affected by multiple endocrine neoplasia disorders.

Macmillan Senior Nurse

(Oncology/Haematology)

Philippa Hand (nee Davies) has been the Macmillan Senior Nurse for cancer services at London North West University Healthcare NHS Trust since November 2018. Before this role, she was the matron of oncology and haematology at the Royal Free Hospital in London. She was the lead nurse for Neuroendocrine Tumours prior to this and has worked within this speciality for 13 years and as a cancer nurse for 23 years. She has completed a masters in advanced cancer care and her dissertation was related to diet and Neuroendocrine Tumours. She was one of the nurses that helped set up the ENETs Nurse Group and was the first Nurse Chair, she has spoken nationally and internationally at conferences and meetings.

Consultant Gastroenterologist

Lead Clinician for the South Wales Neuroendocrine Tumour Service. Clinical and academic gastroenterology, with specialist interest in gastrointestinal cancers, neuroendocrine tumours, gastrointestinal consequences of cancer therapy and quality of life with neuroendocrine tumours.

Clinical Therapeutic

(Nuclear Medicine)

Professor Lewington trained in Southampton where she was Director of Nuclear Medicine from 1992-2004 before moving to the Royal Marsden NHS Foundation Trust as Consultant in Nuclear Medicine and PET CT . Professor Lewington moved to her new post as Chair of Clinical Therapeutic Medicine at King’s College London  in February 2011.

Professor of Endocrinology

John Newell-Price did his specialist training in endocrinology at St. Bartholomew’s Hospital, London, where he was an MRC Training Fellow from 1995-1998. He has been at the University of Sheffield and Sheffield Teaching Hospitals NHS Foundation Trust since 2000.  He leads the Sheffield ENETS European Centre of Excellence for Neuroendocrine Tumours, and from 2018 is the Chair of the UK and Ireland Neuroendocrine Tumour Society.

Consultant Medical Oncologist

Rohini Sharma is a Reader and Consultant in Medical Oncology at Imperial College NHS Trust. She is the Oncology lead for Imperial’s Christie Neuroendocrine European Neuroendocrine Tumour Society (ENETS) Centre of Excellence and also a member of the UK National Cancer Research Network (NCRN) Upper Gastrointestinal Clinical Studies Group. Dr Sharma is the research lead for NETs and has been awarded a number of research grants leading to numerous publications and presentations and national and international meetings. She is also a peer-reviewer for a number of international medical journals.

MD, PhD, FRCP

(Consultant Gastroenterologist)

Dr Toumpanakis is a Consultant in Gastroenterology & Neuroendocrine Tumours (NET) in the Neuroendocrine Tumour Unit – ENETS Centre of Excellence of Royal Free Hospital, London, UK, since 2007, and also Honorary Senior Lecturer at University College of London.  He is a member of the Advisory Board of the European Neuroendocrine Tumour Society (ENETS) and co-Author of UK & Ireland & ENETS Guidelines.

Professor in Medical Oncology

Prof Valle was appointed as a Consultant in Medical Oncology at The Christie having completed his training in Medical Oncology in Manchester in 2000 and Professor in the University of Manchester in 2014. He is the lead for The Christie Neuroendocrine European Neuroendocrine Tumour Society (ENETS) Centre of Excellence and also a member of the UK National Cancer Research Network (NCRN) Upper Gastrointestinal Clinical Studies Group. Professor Valle has been awarded a number of grants for research leading to numerous publications and presentations and national and international meetings and is a peer-reviewer for a number of international medical journals.

Chief of Service

(Consultant Radiologist and Nuclear Medicine Physician)

Dr Vivian has been a consultant in nuclear medicine and radiology for over thirty years, and currently leads the Molecular Imaging and Therapy service at Kings College Hospital NHS Foundation Trust, London. She has clinical and research experience in oncological imaging, particularly endocrine oncology and therapy. Active member and former President of the British Nuclear Medicine Society (2008 – 2010).

Specialist Dietitian

Neuroendocrine Tumours (Research & Development Dietitian)

Tara has specialised in diet for neuroendocrine tumour patients since 2012 and works at the Royal Free Hospital in London.

BSc (Human Biology), M.Sc (Human Nutrition & Dietetics), HCPC (UK) registered Dietitian since 2007, BDA Member, DAA Accredited Practicing Dietitian and Nutritionist, Low FODMAP Diet trained. She has a keen interest and involvement in evidence-based research – including the role of low FODMAP in NETs and impact and management of SIBO (small intestine bacterial overgrowth).

Advanced Clinical Nurse

(Specialist in Neuroendocrine Tumours)

Irene is based at the Beatson West of Scotland Cancer Centre. She has been a cancer and palliative care nurse for over 20 years. The Beatson West of Scotland Cancer Centre serves  a population of around 3 million people. Irene works in multidisplinary team with oncologists, radiologists, pathologists, gastroenterologists, cardiothoracic, upper GI and colo-rectal surgeons. The centre is currently in the process of applying for ENET Centre of Excellence accreditation (2018).

A note to say…

We would also like to thank all members of the Clinical Expert NCUK Community for their time, knowledge and generosity in helping us to answer your questions. They are too numerous to list here but make a huge contribution in ensuring the information we produce and share is relevant, accurate and current.

About Us

Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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