Supporting the

Neuroendocrine Cancer Community

Women’s and Men’s Health – Live Facebook Q&A

Women are more likely to be diagnosed with depression than men, but men have a higher suicide rate. In 2017, 5,821 suicides were recorded in Great Britain. Of these, 75% were male and 25% were female {ONS 2016}. NB Around 62% of women who are successful in suicide...

Important CREON® Update

Mylan, the marketing authorisation holder for Creon, has decided to discontinue the manufacture and distribution of Creon 40K from June 2019. It’s important to note that this decision is not associated with any safety or efficacy findings.  Why have Mylan...

NETest

Trying to find optimal investigations to get the most relevant information about what is happening to your tumour(s) is really important, so that the right diagnostic, treatment and follow up plans can be made. Below is some interesting information on a test that is...

Rare Barometer Voices Survey

New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 languages! We need your help to ensure as many people as possible from the rare disease community complete the survey.  Please spread the...

Gut Surgery – How Diet can Help V2

(Previously titled Neuroendocrine Tumours – Diet & surgery to the Digestive System). This guide has been developed to ensure NET patients have access to reliable dietary information before and after surgery to the digestive system. After surgery you may...

NPF March 2019 Roundup

Each month we provide a roundup of announcements, news and updates. [npfButton size=“small” text=”Click here to read our March roundup” href=”https://www.neuroendocrinecancer.org.uk/wp-content/uploads/March-2019-ebull.pdf”...