Name: Leanne Neuroendocrine Cancer Site: Primary tumour in my rectum and metastases in my liver and thyroid. Hospital: Newcastle Freeman Hospital – Initial Diagnosis I was originally diagnosed in August 2019, with a primary tumour in my rectum and metastases...
Name: Tricia Hospital: The Royal Free – When my Professor told me that he would be recommending PRRT (Peptide Receptor Radionuclide Therapy) as the next step in my treatment plan, I went straight to the ‘Natter’ support group for advice. These groups have...
Name: Carolyn Neuroendocrine Cancer Site: Bowel and secondary liver mets Hospital: Royal Free Hospital, and local. – Carolyn’s Story: Lanreotide. Love it or hate it, it’s been my friend and part of my life since 2011 when liver metastases showed up on a...
Neurodivergence is wider than autism, but this piece specifically refers to autism. – Autism is a spectrum disorder, so it is variable: no one with autism experiences being autistic in the same way, so although this is my experience, and there are...
Name: Lesley Neuroendocrine Cancer Site: Bowel, Liver Hospital: Royal Free – My name is Lesley Porch and I currently work full-time as a secondary school support teacher and pastoral care supervisor. As far back as 1995, I can, unfortunately, recall feeling...
Name: Pete Neuroendocrine Cancer Site: Pancreas with liver mets. I am cycling from North to South Devon in April 2022 to raise awareness of neuroendocrine cancer and funds for the very special charity NCUK. We are all affected by cancer in some way at some point in...