Supporting the

Neuroendocrine Cancer Community

Changes and updates to current services

Jan 25, 2022

We have seen a number of changes in the Neuroendocrine Cancer world over the last few years and we also acknowledge that the past 2 years, in particular, have been quite difficult for many.

Indeed, there have been many challenges and changes that have been experienced by all – affecting not just the lives of our patient community – but also ourselves, our friends and families, and our colleagues within the NHS, research and advocacy communities.

As a charity, there have been times that we were uncertain as to whether we would weather the challenges, changes and losses it brought or be able to access and utilise some of the opportunities (for example – keeping our community connected through zoom)- your support has helped pull us through.

We are now in a position where a few further changes are needed to help us to continue to deliver the support and services we provide.

We are currently looking to expand our team – this is due not only to an increase in demand for our services but also an increase in our activities – to achieve our goals – as laid out in our ‘Gap’ campaigns – to ensure all affected by this group of rare cancers have a clear, effective and holistic diagnostic/treatment pathway – with appropriate support along the way.

Changes and updates to current services: 

  • Nurse Helpline:

    NEW Hours – Tuesday – Thursday – 10:00am – 4:00pm
    You will also be able to contact our specialist nurse by email using the Ask The Nurse Contact Form.

    This is a temporary change – which will be reviewed on recruitment of an additional nurse/cancer support worker.

    Please noteThe Nurse Helpline is not a general enquiry line – it is for diagnosis and health related queries and concerns – including access to emotional/psychosocial support. Practical information e.g. travel insurance, resources requests, shop and fundraising/donation queries can be dealt with through the office number : 01926 883487 – if you cannot find the information you need on the website.

  • Counselling:

    Our free-to-access, confidential service for patients and supporters, family members or friends – is unchanged – however, there may be times during the year when referrals may take a little longer than usual to be processed. Our counsellors have a specialised understanding of the complex issues that can arise in being diagnosed, and living with, Neuroendocrine Cancer over time.  Further information and how to contact the team can be found here.

  • Local Support Groups:

    New Regional and National groups have been added to our Calendar – to expand the support network and  increase your access to it. Please note our zoom groups can also be accessed by landline phones – so you don’t always need the internet or a computer. See here for further information.

    Visit the Natter Calendar to see a list of all scheduled groups for 2022 – to join a group you can self-register using the links provided.

  • Patient Information:

    Every week new information, updates and resources are added to our website – check these out through our News page.

    If you would prefer to have a Factsheet or Booklet in “hard” copy – or would like one of our wallet alert cards – these can be ordered online here. If you are a healthcare professional – and would like to request any of our information resources – please use the order form here.

We would like to offer our sincerest gratitude to you, our community, for your time, your thoughtfulness, dedication and support, particularly over the past 2 years.

Together we are stronger – and we look forward to building further on the foundations we have laid together – to keep our community safe, well-served and strong.

Catherine, Nikie, Leanne, Kate & Beth

The NCUK Team