Getting The Right Care
As soon as you’re diagnosed with Neuroendocrine Cancer, it’s vital to get the best possible advice and treatment from the right team of people and across the UK there are procedures in place to ensure this happens.
If you’re diagnosed with a Neuroendocrine Cancer, a specialist, accredited, “NET” specific Multi-Disciplinary Team (”NET” MDT) should review your case on an ongoing basis.
Getting referred to a specialist “NET” team
Referrals to specialist Neuroendocrine Cancer services work slightly differently across the UK. They can also vary slightly depending on who refers you – for example your GP, A&E staff or a specialist in another area of medicine.
This doesn’t necessarily mean that you need to travel to and keep travelling to your nearest specialist centre, but it does mean that information about your situation, including the results of any scans and other tests, should be looked at by the “NET” MDT. This team can also advise on or arrange the most appropriate tests and treatment for you.
So wherever you are and whoever is caring for you, it is vital to get support from a specialist “NET” MDT as soon as possible.
UK cancer guidelines recommend a multidisciplinary approach to clinical decision-making. This aims to ensure that cancers are accurately diagnosed, staged and treatment recommendations are evidence based, patient centred, and reached by consensus – rather than single opinion.
A multidisciplinary team (MDT) is made up of disease specific experts including surgeons, radiologists, histopathologists, oncologists, clinical nurse specialists, allied health professionals, and multidisciplinary team coordinators and has a designated lead clinician.
Because Neuroendocrine Cancer is uncommon, your MDT may not be based at your nearest hospital, this can mean that it may take a little longer than you’d like to get results or see your treatment plan. But try to bear in mind that the MDT approach is designed to put you in the best possible position, and do let your doctors know if you have any concerns.
For handy tips on how you can work with your team click the button below.
You may be referred to one automatically, but if that doesn’t happen you can ask for a referral to be made.
At Neuroendocrine Cancer UK we work with all of the UK’s specialist Neuroendocrine Cancer services either directly or through UKI NETS. The UK and Ireland Neuroendocrine Tumour Society (UKINETS) is a professional organisation made up of the UK and Ireland’s experts and other experts and allied healthcare professionals who work in the field of Neuroendocrine Cancer. The society maintains an up-to-date list of experts, clinics and accredited Centres of Excellence.
For a current list of experts, clinics and Centres of Excellence please visit the UKINETs website here. HANDY TIP! Scroll down Clinical Practice page to find the list!
Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.
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