You & Research

We recognise the patient voice in research is vital.

Neuroendocrine Cancer UK undertakes in-house research as well as supporting external clinical trials, studies and surveys.

Your voice is a hugely underused expertise in research and we thank everyone who has contributed to any of the research that we have undertaken or supported.

Advocacy groups and Patient Organisations, like NCUK, are working globally to increase the patient contribution in research.

For information about Clinical Trials click here

BIOBANKING

The purpose of biobanking is to improve the prevention, diagnosis and treatment of a wide range of illnesses – including rare or uncommon cancers like Neuroendocrine Cancer.

Biobanking is the process of collecting and storing removed tissue ( for example following an operation or biopsy procedure) no longer needed for diagnosis or treatment and / or taking a blood sample – for use in current or future research.

There are strict rules and regulations that govern biobanking and a centralised register of institutions involved.

Biobanking

The purpose of biobanking is to improve the prevention, diagnosis and treatment of a wide range of illnesses – including rare or uncommon cancers like Neuroendocrine Cancer.

Biobanking is the process of collecting and storing removed tissue ( for example following an operation or biopsy procedure ) no longer needed for diagnosis or treatment and / or taking a blood sample – for use in current or future research.

There are strict rules and regulations that govern biobanking and a centralised register of institutions involved.

For more information about Biobanking – including how to get involved and/or check if your hospital is registered – click here.

Organ and Body Donation

We are occasionally asked whether it is still possible to donate your body to science – and yes you can.

The same organisation that regulates body donation – also regulates, and provides advice and information on, organ and tissue donation.

For further information click here.

Non-clinical research

Every year in the UK – there is a National Cancer Experience Survey – the purpose of which is gather information about the care and experience of care of those diagnosed and being treated for cancer – the aim is to monitor standards and improve services, experiences and outcomes.

For more information click here.

At NCUK we also undertake non-clinical studies and surveys – to help us improve and maintain our services, but more importantly to ensure that your voice is heard and that our shared vision of a world in which people know how to recognise, diagnose, treat, care for, and ultimately, cure patients with Neuroendocrine Cancer, is achieved.

You can Get Involved here: