Supporting the

Neuroendocrine Cancer Community

Faces of NCUK

Be part of a like-minded community where you can share your own thoughts and feelings about Neuroendocrine Cancer.

Around 36,000 people are affected by Neuroendocrine Cancer in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis.

Faces of NCUK is here for you to be part of a huge community of like minded people, and to share your own thoughts and feelings about Neuroendocrine Cancer. Whoever you are – a Neuroendocrine Cancer patient, a supporter, a friend, healthcare professional or a loved one – you have the power to take action and make your voice count.

 

By talking about your experiences, you can help us tell powerful stories that raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the UK. People who’ve shared their story often find it a really positive experience and an opportunity to make a real difference for people living with Neuroendocrine Cancer, and their families.

Whether you are living with Neuroendocrine Cancer, or supporting a loved one who has been diagnosed, we’d love to hear from you.

How can you get involved?

All you need to do at this stage is click on the ‘Share your story’ button below and answer some questions, giving us as much information as you can and feel comfortable with. If we need more details, a member of the Stories team will get in touch to have a chat. 

Thank you.

 

The stories here have been shared by Neuroendocrine Cancer patients, supporters, healthcare professionals and friends and colleagues of NCUK. We will constantly update this page, so please be sure to visit it again. 

For some this has been the first time they have written about their experience and where they are now. Patients share their experiences of how they became ill, their treatment, and their road to recovery. Supporters and Healthcare professionals share their experiences. Please note that while most stories end on a positive note, others reveal insights into the very difficult roads that many Neuroendocrine Cancer patients face.

Please note that the stories and opinions posted in the Faces of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.

Supporter, Lucy has written a song for her Dad.

From Diagnosis to YouTube, by Alan

From Diagnosis to YouTube, by Alan

Name: Alan Neuroendocrine Cancer Site: Pancreas   Alan's story I'm a father with two adult daughters, married to Kate since 1995.  I live in Cheshire with dogs, cats, hens, and a parrot! I...

read more
That Fraudulent Feeling…

That Fraudulent Feeling…

That Fraudulent Feeling … The last time I put pen to paper was November 2021 when I wrote a blog about my decision to take early retirement from a job I loved - because of a cancer I certainly...

read more
But Debra, you look so well …

But Debra, you look so well …

But Debra, you look so well … Some of you will recall that I was diagnosed with Neuroendocrine Cancer in February 2021, with a primary site in my rectum and metastases to my liver. This is an update...

read more
Stable: So, is that it?

Stable: So, is that it?

For six years my life with Neuroendocrine Cancer has had a rhythm that has enabled me to live a positive and organised life. Last month, that changed for me. And that change rocked my confidence. My...

read more
Travelling – Be Prepared: Kath Lewis

Travelling – Be Prepared: Kath Lewis

On the whole, travel should be fairly easy in everyday life, with the odd curveball thrown in here and there…. Happens to us all.  I am not talking about just nipping out, but about going out for...

read more
You couldn’t write it …

You couldn’t write it …

You couldn’t write it … by Jane Dayus-Hinch Four weeks ago, I woke up with a headache, which is nothing new for me.  I took a couple of paracetamol, got up, washed, and dressed, and carried on… Four...

read more
Ten years on and counting…..

Ten years on and counting…..

Towards the end of 2022, we passed the milestone of ten years since my husband Ian was first diagnosed with Neuroendocrine Cancer. What a rollercoaster ride it has been, the highs, the lows, the...

read more