URGENT UPDATE 9TH JULY – Rare Cancers Bill

URGENT UPDATE 9TH JULY – Rare Cancers Bill

Urgent Update 9th July 2025 Ahead of third reading of the Bill on Friday morning, an amendment to the Bill has been tabled. It means that should this amendment be pushed through, it will have to go to a vote. If 40 MPs do not turn up to the debate (with a minimum 27...
PERT Update April 2025

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
Hospital Outreach

Hospital Outreach

Can you help us with reaching out to hospitals?  With your help we will be able to highlight the full range of support and services we offer to the hospital teams and encourage them to inform their patients about our services. Our ask of you: By acting as a ‘bridge’...
National Cancer Plan England 2025 – Consultation Open  

National Cancer Plan England 2025 – Consultation Open  

National Cancer Plan England 2025 – Consultation Open   Last year, Lord Darzi’s independent investigation into the NHS, found the need to improve cancer diagnosis rates, waits and outcomes.   To mark World Cancer Day, on Tuesday 4th February 2025, the Secretary of...