


Why Self-Advocacy Matters in a Neuroendocrine Cancer Diagnosis
Why Self-Advocacy Matters in a Neuroendocrine Cancer Diagnosis When you hear the words “you have cancer,” it can feel like the ground disappears beneath your feet. Everything becomes overwhelming, especially when the diagnosis is something as complex and unfamiliar as...
PERT Update April 2025
PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
Hospital Outreach
Can you help us with reaching out to hospitals? With your help we will be able to highlight the full range of support and services we offer to the hospital teams and encourage them to inform their patients about our services. Our ask of you: By acting as a ‘bridge’...