Supporting the

Neuroendocrine Cancer Community

Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND Carcinoid Syndrome (CS). The precise cause is unknown but is thought to be related to abnormally raised levels of...
Who we were before a cancer diagnosis

Who we were before a cancer diagnosis

VOICES OF NCUK WHO WE WERE BEFORE A CANCER DIAGNOSIS AND WHO WE ARE NOW – THE FACE IN THE MIRROR Before life changed forever, before in fact everything changed and life was turned upside down, we would look in the mirror and see the people we had always been, going...
Neuroendocrine Cancer Patient Story

Neuroendocrine Cancer Patient Story

Name: Deborah Age: 60 Neuroendocrine Cancer Site: Primary to small bowel. Metastasis to liver.   Deborah’s story: I was diagnosed in February 2016 with small bowel Neuroendocrine Cancer with liver metastasis. For years I thought I was going through the...