by Clare Gerrard | May 31, 2022
New ENETs Guidance paper for Carcinoid Syndrome & Carcinoid Heart Disease: Recommendations and Future Research Aims Carcinoid syndrome (CS) is the most frequent hormonal complication accompanying neuroendocrine neoplasms (NENs), predominantly encountered in up to...
by Leanne Talbot | May 2, 2022
Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND Carcinoid Syndrome (CS). The precise cause is unknown but is thought to be related to abnormally raised levels of...
by Leanne Talbot | Oct 6, 2021
VOICES OF NCUK WHO WE WERE BEFORE A CANCER DIAGNOSIS AND WHO WE ARE NOW – THE FACE IN THE MIRROR Before life changed forever, before in fact everything changed and life was turned upside down, we would look in the mirror and see the people we had always been, going...
by Leanne Talbot | Jun 17, 2021
Name: Deborah Age: 60 Neuroendocrine Cancer Site: Primary to small bowel. Metastasis to liver. Deborah’s story: I was diagnosed in February 2016 with small bowel Neuroendocrine Cancer with liver metastasis. For years I thought I was going through the...