Supporting the

Neuroendocrine Cancer Community

Olutaton®

Olutaton®

Neuroendocrine Cancer UK has been made aware that there is an imminent issue regarding the availability of Olatuton® (Octreotide long-acting) somatostatin analogue injections. This is due to a legal issue that has led to the withdrawal of Olutaton®: it will not be...
When is a rash not a rash?

When is a rash not a rash?

Name: Sophie Age: 52 Neuroendocrine Cancer Site: Glucagonoma – pancreas (primary), paraaortic retroperitoneal lymph nodes (secondary). Sophie’s Story: When is a rash not a rash? My NET story probably begins some time before 2014, but that is the year I...
Neuroendocrine Cancer Patient Story

Neuroendocrine Cancer Patient Story

Name: Deborah Age: 60 Neuroendocrine Cancer Site: Primary to small bowel. Metastasis to liver.   Deborah’s story: I was diagnosed in February 2016 with small bowel Neuroendocrine Cancer with liver metastasis. For years I thought I was going through the...
Neuroendocrine Cancer UK Ambassador, Simon

Neuroendocrine Cancer UK Ambassador, Simon

Please join us in welcoming our newest Ambassador, Simon to the team 🦋   Simon is 38, husband to Amy and father to three girls. Previously a Senior Vice Principal in secondary education. Here’s Simon’s story:   💬 I was diagnosed in October 2018 (aged 35)...
NHS Cancer Care At Home

NHS Cancer Care At Home

NHS Cancer Care At Home – At the end of March NHS England & NHS Improvement issued the following statement: ‘Covid-Friendly’ Cancer Care At Home Extended For More Patients Thousands of people with cancer can benefit from ‘Covid friendly’ treatments from...