by Clare Gerrard | Apr 26, 2023
Rare : not widely known; not frequently used or experienced; uncommon or unusual. “The mantra of ‘hear hooves, think horse not zebra’ is greatly contributing to diagnostic delays and poor patient experience” says Dr Lucy McKay, founder of Medics4RareDiseases. “The...
by Leanne Talbot | Dec 19, 2022
We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in 2016. In his video here, he talks about the symptoms he experienced over a 13-year period before an official...
by Leanne Talbot | Apr 14, 2022
Please join us in wishing all the luck in the world to Pete, who along with his family and friends, will be embarking on a cycle ride from the north to the south of Devon tomorrow. You may already be aware of this incredible fundraiser, as Pete has featured in many...
by Leanne Talbot | Apr 1, 2022
Our wonderful supporter and fundraiser, Pete has been featured in the Plymouth Live! READ HERE ➡️ https://www.plymouthherald.co.uk/news/plymouth-news/plymouth-mans-miracle-fightback-after-6887036 You can support Pete’s cycle here –...
by Leanne Talbot | Mar 24, 2022
Neuroendocrine Cancers (NETs and NECs) are globally increasing in incidence (those newly diagnosed) and prevalence (those living with Neuroendocrine Cancer). However, many may not be diagnosed until liver metastases (spread) has occurred. Neuroendocrine liver...
