Supporting the

Neuroendocrine Cancer Community

Working Together

Working together to improve care for patients and spread awareness of these rare conditions to aid earlier diagnosis.

Our vision is of a world in which people know how to recognise, diagnose, treat, care for, and ultimately, cure patients with Neuroendocrine Cancer.

We believe in collaboration, our whole community working together, to improve holistic care for patients, to promote access to best care and treatments, increase awareness, encourage and support clinical research and ultimately improve patient experience, self-efficacy and outcomes.

Whether you work within primary, secondary or tertiary healthcare – If you’re a healthcare or allied healthcare professional – and want to know more about what we do, how you can get involved and how we can support your practice and professional development, then select from the options below to find information specific to you.

NCUK is very grateful for the generous time given, support and input from our Clinical Expert Advisory Team, NCUK Patient Ambassadors, Trustee Board (which includes healthcare professionals) and our patron Professor Martyn Caplin.

Supporting Your Patient

We have a number of resources and services that can be used, in your clinical practice, to assist in supporting your patients.

Supporting Your Practice and Professional Development

How we can support your practice, as well as your professional development.


Neuroendocrine Cancer UK exists to address the needs and concerns raised by our Neuroendocrine Cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine Cancer – to have their individual and collective voice heard.

We are Proud Members

We are proud members of Cancer52, International Cancer Alliance (INCA) , European Patient Advocacy Group (EPAG) for European Reference Networks (ERNs) for Rare Endocrine Cancers ( EURACAN), UK & Ireland Neuroendocrine Tumour Society (UKINETs), European Neuroendocrine Tumour Society (ENETs) , European Society of Endocrinology (ECE) & European Society of Medical Oncology (ESMO).

And Professionally Collaborate with fellow patient organisations:

NCUK and AMEND joint venture supports adrenocortical cancer patients through ACC Support UK.

NCUK and Maggie’s Centres joint venture supports anyone affected by Neuroendocrine Cancer through part of our Natter initiative.

NCUK is an active member of Cancer52 , an organisation that works alongside CRUK and PHE to influence national cancer strategies and service provision.