Interesting
publications
Every research study helps build our understanding of neuroendocrine cancer and improve the lives of those affected by it. Research from around the world is advancing our knowledge of neuroendocrine cancer, shaping future care and highlighting the experiences of people living with the disease.
Neuroendocrine Cancer UK is actively involved in a wide range of national and international research projects, ensuring that the patient voice remains at the heart of scientific discovery. This page showcases some of the latest and most influential research publications, alongside examples of the studies and projects we are supporting.
We are incredibly grateful to everyone who takes part in surveys, questionnaires and research studies. Every contribution helps build the evidence needed to improve services, influence policy, guide future research and ultimately make a difference for the neuroendocrine cancer community.
About the research on this page
Research helps improve our understanding of neuroendocrine cancer, but individual studies do not always lead to immediate changes in treatment or care. We provide summaries to help patients and families understand the latest evidence.
A quick guide to reading research papers
Research papers can sometimes feel complicated, but you don’t need to read every word to understand the main findings.
Start with the abstract or summary, which provides an overview of the study, then look at the conclusion to see the key messages.
As you read, consider who took part in the research, who funded it, whether the findings are relevant to people affected by neuroendocrine cancer, and what the study’s authors say about its limitations.
Remember, no single study provides all the answers. Research is one piece of the puzzle and should always be discussed with your healthcare team if it relates to your care.
Top tips:
- Start with the abstract and conclusion
- Check who took part in the study
- Look for the study’s limitations
- Remember that one study is rarely the final answer
- Discuss any questions with your healthcare team
Publications
Diagnosis and awareness
Delays and routes to diagnosis of neuroendocrine tumours
Basuroy R et al. |BMC Cancer 2018;18(1):1122
Presenting symptoms and delay in diagnosis of gastrointestinal and pancreatic neuroendocrine tumours
Basuroy R et al. Neuroendocrinology 2018;107(1):42-49.
Living with neuroendocrine cancer
Health-related quality of life in neuroendocrine neoplasia: a critical review
White BE et al. Endocr Relat Cancer 2020;27(7):R267-R280.
Patient perspectives, from diagnosis through treatment and beyond
Bouvier C and Jervis N. Curr Opin Endocrine Metabol Res 2021;18:254-257.
Treatment and care
Current and emerging strategies for the management of advanced / metastatic lung neuroendocrine tumours
Rutherford M et al. Curr Probl Cancer 2024;49:101061.
Bone metastases in neuroendocrine tumors: Molecular pathogenesis and implications in clinical practice
Cives M et al. Neuroendocrinology 2021;111(3):207-216.
Patient experience and advocacy
Neuroendocrine cancer patient experience survey
Neuroendocrine Cancer UK (formerly the NET Patient Foundation), 2015.
COVID & My Care Report 2020
Neuroendocrine Cancer UK, 2020.
The role of patient support groups in neuroendocrine neoplasms
Kolarova T and Bouvier C. Curr Oncol Rep 2021;23(5):53.
Incidence and survival studies
Are neuroendocrine neoplasms no longer a rare cancer?
Bouvier Ellis C and Jervis N. Neuroendocrinology 2025;115(12):969-973
Incidence and survival of neuroendocrine neoplasia in England 1995–2018: A retrospective, population-based study
White BE et al. Lancet Reg Health Eur 2022;23:100510.
Specific therapies – clinical trials
Phase 3 trial of 177Lu-Dotatate for midgut neuroendocrine tumors
Strosberg J et al. N Engl J Med 2017;376(2):125-135.
Everolimus for the treatment of advanced, non-functional neuroendocrine tumours of the lung or gastrointestinal tract (RADIANT-4): a randomised, placebo-controlled, phase 3 study
Yao JC et al. Lancet 2016;387(10022):968-977.
On this page
We’re here to help. Please call.
Our dedicated neuroendocrine cancer helpline provides general neuroendocrine cancer information and peer support.
Contact us