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Help us raise awareness
Help more people understand and recognise neuroendocrine cancer
It takes an average of almost 5 years for a neuroendocrine cancer diagnosis and more than 50% of people are diagnosed at a late stage. Raising awareness of neuroendocrine cancer can help more people recognise the signs and symptoms, support earlier diagnosis and improve understanding of a cancer that is still too often overlooked. It can also help ensure that the experiences of people affected by neuroendocrine cancer are heard.
There are many ways you can help us raise awareness. By sharing our information and resources, or simply talking about neuroendocrine cancer with the people around you, you can help us reach more people, improve understanding and make this invisible cancer harder to ignore.
Our campaigns
The Invisible Cancer
On World Cancer Day 2026, we launched The invisible cancer: How delays, misdiagnosis and unequal treatment of neuroendocrine cancer in the UK are costing lives, calling for greater recognition and understanding of neuroendocrine cancer.
On World Neuroendocrine Cancer Day 2026, we launched a follow-up report, Seen Too Late, which reveals how little has changed in the diagnosis of neuroendocrine cancer over the past six years.
Spotlight on neuroendocrine cancer
This campaign increases awareness and understanding of neuroendocrine cancer among non-neuroendocrine cancer specialist healthcare professionals. A series of bite-sized overviews provide practical educational resources to help healthcare professionals recognise neuroendocrine cancer.
You can help us spread awareness by letting your GP or other healthcare professionals know about these resources.
Open Conversations
Neuroendocrine cancer can have a huge emotional impact on people affected by the disease, particularly due to the burden associated with delayed diagnosis, misdiagnosis and the unpredictable nature of the disease.
Our Open Conversations campaign explores the unique psychosocial challenges experienced by people with neuroendocrine cancer and their carers. It aims to help healthcare professionals better understand and address their emotional needs and encourage more open conversations about the emotional impact of the disease.
World Neuroendocrine Cancer Day
Each year, the global neuroendocrine cancer community comes together on 10 November to raise awareness, share stories, and support those living with this complex and often unheard of and misunderstood cancer.
Take part to shine a light on neuroendocrine cancer and the people behind every diagnosis.
Other ways to raise awareness
Share information with your GP practice
Our GP Awareness Cards are designed to help raise awareness of the symptoms of neuroendocrine cancer among GPs and other healthcare professionals.
You can help by ordering cards and sharing them with your local GP practice or healthcare services, helping more healthcare professionals become aware of neuroendocrine cancer and its signs and symptoms.