News
The latest Neuroendocrine Cancer news and updates.
In this section you can learn more about:
- Advocacy, awareness and our campaign work
- Policy and political news
- Neuroendocrine Cancer information, education and support updates
- Neuroendocrine Cancer research updates
Charity updates and fundraising - Neuroendocrine Cancer – Breaking news!
If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or Neuroendocrine Cancer in the news, please let us know by emailing us.
Neuroendocrine Cancer Headlining the News
OCTOBER 2024 19/10//2024 'Doctors put my symptoms down to allergy - now I've got incurable cancer'...
PERT Update
As some of you may be aware, we are working with fellow charities and patient organisations to...
Fair Market Value for Charities in Partnership Work
Charities and patient organisations, like Neuroendocrine Cancer UK, alongside individual patients,...
2024 Pump-priming Grants are Now Open
As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, and in collaboration with the...
Join our Team – Job Vacancies
27/09/2024 - NEW VACANCY - OPEN Fundraising Manager - SELECT HERE TO LEARN MORE AND APPLY....
Spotlight on Neuroendocrine Cancer: Campaign Update and Healthcare Professionals’ Series Overview
The ‘Spotlight on Neuroendocrine Cancer’ campaign aims to raise awareness of neuroendocrine cancer...
Research Trial – LANTana: RECRUITING
SELECT HERE TO DOWNLOAD
New Research Trial – The NELMAS trial
NELMAS - An international multi-centre, stratified, open, randomized, comparator-controlled,...
CABINET Phase III trial update
Final results, published by Ipsen, Monday 16th September. The number of people newly diagnosed...
PERT webinars for HCPs: including CNSs, GPs and Pharmacists
Healthcare Professional Webinars: PERT and what to do during current shortages (Please note: that...
Modernising Support for Independent Living: The Health and Disability Green Paper
In April this year, the government published a Green paper consultation on proposals for PIP...
PERT Update: Addressing Current Shortages
At Neuroendocrine Cancer UK, we have been actively collaborating with our charity partners to...
June Highlights
Thanks to you, this is what we have been able to achieve this month. - [video width="1080"...
Announcing the 2024 Pump-Priming Grant Winner
As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, and in collaboration with the...
Join Us for Ruth’s 250th Daily Dip for Dave!
Can we get 250 people around the world dipping on the 15th of June? Ruth, the incredible wife of a...
Neuroendocrine Cancer UK: PERT UPDATE 30th May 2024
As you may be aware, over the last few months, we at Neuroendocrine Cancer UK, have been working...
SIRT Therapy for Neuroendocrine Tumours Webi-Natter Event – May 30th
- Neuroendocrine Cancer UK is thrilled to announce an upcoming Webi-Natter event focused on the...
Launch of Rareminds Wellbeing Hub and Rare Minds Matter Survey Results
- Launch of Rareminds Wellbeing Hub and Release of "Rare Minds Matter - Rare Disease and Mental...
NICE Recommends SIRT Therapy for neuroendocrine tumours
We are delighted to share with you the news that NICE has recommended SIRT (selective internal...
Shape the future of Neuroendocrine Cancer UK: Complete our survey today
At Neuroendocrine Cancer UK we want to ensure we continue to meet your needs and support you in...
Research Participants Needed – Online Peer Support in Long-Term Conditions
CommonGround Online Peer Support in Long-Term Conditions: A team at King’s College London has...
Conversation Openers: Practical advice for healthcare professionals
Conversation Openers: Practical advice for healthcare professionals on ‘how’ to have open...
May Highlights!
Thanks to you, this is what we have been able to achieve this month. - [video width="1080"...
OPEN Health Want to Hear from You – Research Study
OPEN Health are conducting interviews to understand the experiences of people living with...
New screening programme identifies clinical trial opportunities for neuroendocrine cancer patients
- We are often told by our community that it is difficult to find information on clinical trials,...
Rarecan Seeks Your Input on Genetic Analysis Services
Rarecan, in collaboration with its partners, is exploring the potential for offering...
Pancreatic Enzyme Replacement Therapy (PERT) Update – Creon®, Nutrizym® and Pancrex®.
Pancreatic Enzyme Replacement Therapy (PERT) - product brands: Creon®, Nutrizym® and Pancrex®. ...
Goblet Cell Adenocarcinoma of the Appendix (GCA)
Some of you may have seen an article published in the Mail Online (19th March) about a young mum,...
Primary Care Society for Gastroenterology Podcast Episode on Neuroendocrine Cancer
As part of our ‘Spotlight on Neuroendocrine Cancer’ campaign, we aim to raise awareness of...
Neuroendocrine Cancer Surgical Specialty Lead (SSL) Appointed
- As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, we are delighted to announce...