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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Ongoing Creon® Shortage Continues into 2027

The UK's Serious Shortage Protocols for Creon® have been extended to 2 October 2026, with limited supplies expected to continue into 2027. We explain what this means for your prescription, why pharmacists are capped at one month's supply, and what to do if you are struggling to obtain Creon®.

Published: 1 month ago

By Beth Chesser

Published: 1 month ago

By Beth Chesser

New National Cancer Board to Oversee Improvements in Cancer Care

A new National Cancer Board will oversee improvements in cancer care, focusing on stronger standards, better services and improved outcomes for patients.

Published: 1 month ago

By Beth Chesser

Published: 1 month ago

By Beth Chesser

New Pilot Programme: Solution-Focused Hypnotherapy for People Living with Neuroendocrine Cancer

Neuroendocrine Cancer UK is launching an 8-week online Solution-Focused Hypnotherapy pilot programme for people living with neuroendocrine cancer. The programme offers supportive group sessions, relaxation techniques and practical strategies to help participants manage anxiety, stress, uncertainty, fatigue and other challenges associated with living with neuroendocrine cancer.

Published: 2 months ago

By Beth Chesser

Published: 2 months ago

By Beth Chesser

National Cancer Strategy for Wales: Open Call for Evidence 

The Welsh Government is developing a National Cancer Strategy for Wales and is inviting individuals and organisations to share their views through an open call for evidence. Patients, healthcare professionals, researchers, charities and other organisations can contribute experiences, evidence and recommendations to help shape the future of cancer care and outcomes in Wales.

Published: 2 months ago

By Beth Chesser

Published: 2 months ago

By Beth Chesser

What Makes Good Communication in Cancer Care: The Patient’s Perspective

Good communication is an essential part of cancer care. Three women living with Stage 4 lung neuroendocrine cancer share their experiences of diagnosis, misdiagnosis and treatment, highlighting the importance of empathy, honesty, trust, shared decision-making and listening to patients.

Published: 2 months ago

By Beth Chesser

Published: 2 months ago

By Beth Chesser

Share Your Experience: New Survey for Families, Friends and Caregivers of People Living with Neuroendocrine Cancer

Supporting someone with neuroendocrine cancer can have a significant emotional, practical, social and financial impact on family members, friends and caregivers. Neuroendocrine Cancer UK is inviting anyone who has supported someone living with neuroendocrine cancer to share their experience through a new anonymous survey and help shape better support for future caregivers.

Published: 2 months ago

By Beth Chesser

Published: 2 months ago

By Beth Chesser

Share Your Neuroendocrine Cancer Diagnosis Journey and Help Shape the Future of Care

Share your neuroendocrine cancer diagnosis journey and help shape the future of care. Neuroendocrine Cancer UK is inviting people aged 18 and over with a neuroendocrine cancer diagnosis to take part in a new survey exploring diagnostic experiences, delays, support needs and opportunities for improvement.

Published: 2 months ago

By Beth Chesser

Published: 2 months ago

By Beth Chesser

National Cancer Plan (England) Cancer52 Update: Progress Six Months On

Six months after the launch of England’s National Cancer Plan, progress is being made in early diagnosis, cancer waiting times, research, digital services and support for rare and less common cancers. Cancer52 and its members welcome the progress while highlighting the need to keep patient voices and rare cancers at the heart of future cancer policy.

Published: 3 months ago

By Beth Chesser

Published: 3 months ago

By Beth Chesser

Timms Review Update: How You Can Have Your Say and Help Shape the Future of PIP

The Timms Review is inviting disabled people and people with long-term health conditions to help shape the future of Personal Independence Payment (PIP). Workshops will take place across the UK in September and October 2026, with online and in-person options, accessibility support, expenses and a one-off payment for participants. Registration closes at 5pm on Friday 21 August 2026.

Published: 3 months ago

By Beth Chesser

Published: 3 months ago

By Beth Chesser
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