Supporting the

Neuroendocrine Cancer Community

Research Papers from Around the World

Gathering data is vital, and Neuroendocrine Cancer UK actively participates in numerous research projects both nationally and internationally, ensuring that the patient perspective is central. Below, you’ll find a snapshot of some of our ongoing work, including notable headliner research papers. We extend our heartfelt thanks to each person who completes a questionnaire or participates in a survey. Your input is invaluable, providing a platform to amplify your voice and influence positive change.

If you’re interested in contributing to any of our research initiatives, please don’t hesitate to reach out and get involved.

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Published: 2024

Current and emerging strategies for the management of advanced/metastatic lung neuroendocrine tumors.

Published: 2022

Incidence and survival of neuroendocrine neoplasia in England 1995–2018: A retrospective, population-based study.

Published: 2022

Published: 2021

Sex differences and survival of neuroendocrine neoplasia in England 2012-2018.

Published: 2021

Patient Perspectives, from Diagnosis Through Treatments & Beyond.

Published: 2021

The Role of Patient Support Groups in Neuroendocrine Neoplasms.

Published: 2020

Evaluating cost-effectiveness in the management of neuroendocrine neoplasms.

Published: 2020

Health-related quality of life in neuroendocrine neoplasia: a critical review.

Published: 2020

COVID & My Care Report.

Published: 2020

Barriers to Diagnosis Report.

Published: 2019

Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.

Published: 2019

Impact of neuroendocrine morphology on cancer outcomes and stage at diagnosis: a UK nationwide cohort study 2013–2015.

Published: 2018

Presenting Symptoms and Delay in Diagnosis of Gastrointestinal and Pancreatic Neuroendocrine Tumours.

Published: 2018

Prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues.

Published: 2018

Delays and routes to diagnosis of neuroendocrine tumours.

Published: 2017

Widening the NET.

Published: 2015

Where is Chapter 10?

Published: 2015

Patient Experience Survey.

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