I had never heard of neuroendocrine cancer until I was diagnosed. Neither, it seemed, had the...

We're delighted to introduce Chrissie as the new Chair of Neuroendocrine Cancer UK's Ambassador...

I live in Tunbridge Wells and am under the care of the Lung Oncology team at Maidstone and...

Writing this has reminded me of how far I have come since my diagnosis….  My name is Kath and I am...

About me  My name is Mary Phillips, and I am a Dietitian working in...

A day in the life of …  My name is Steve Jeans, and I am a clinical scientist working in the...

... After being diagnosed with a rare lung neuroendocrine tumour, Chris’s journey has involved...

Name: Julie Type: MEN1 (Multiple Endocrine Neoplasia)  Hospital: Leicester Royal Infirmary Date of...

One way or another, a cancer diagnosis is life changing. And when you are living with cancer,...

Name: Melanie  Neuroendocrine Cancer Site: Lung (Atypical Carcinoid) Diagnosis: October 2023...

Name: Maxine Neuroendocrine Cancer Site: Primary site: Small Bowel  Centre of Excellence:...

Name: Kath Neuroendocrine Cancer Primary Site: Small Bowel Centre of Excellence: The Christie...

Well, that was an interesting weekend. For the last 2 years I’ve been managing my blood glucose...

Name: Chris Neuroendocrine Cancer Site: Lung Hospital: Royal Free We’re delighted to welcome Chris...

Name: Terrie Neuroendocrine Cancer Site: Small Bowel with Liver Metastases Hospital: The Christie...

Name: Davinya Neuroendocrine Cancer Site: Lung Hospital: The Christie Hospital, Manchester -...

Name: Angela Neuroendocrine Cancer Site: Ileal, small intestine with metastases in my liver,...

Name: Gary Neuroendocrine Cancer Site: Small Bowel Neuroendocrine Tumours with Liver Metastases. ...

Name: Marie Martin Neuroendocrine Cancer Site: Pancreatic Primary - I’d rather not be writing this...

Carole's Story Neuroendocrine Cancer Site: Pancreas Hospital: The Christie, Manchester Carole...

Written by Cynthia, neuroendocrine cancer patient. Neuroendocrine cancer site: Pancreas. Hospital:...

Story by: LisaNeuroendocrine cancer site: LungHospital: The Christie, Manchester I was diagnosed...

In memory of Andrew, written by his wife, Faye. - - I had known Andrew throughout my teenage...

  Name: Jane Since my diagnosis seven years ago, after a long search for the reason for my...

Name: Alan Neuroendocrine Cancer Site: Pancreas   Alan's story I'm a father with two adult...

  Hi. I’m Dougie, a 59-year-old retired GP from South Lincolnshire, though originally from...

That Fraudulent Feeling … The last time I put pen to paper was November 2021 when I wrote a blog...

Recorded November 2020.

But Debra, you look so well … Some of you will recall that I was diagnosed with Neuroendocrine...

I was a “typical boy” throughout my own education. I did as little as possible and hoped for the...

For six years my life with Neuroendocrine Cancer has had a rhythm that has enabled me to live a...

On the whole, travel should be fairly easy in everyday life, with the odd curveball thrown in here...

You couldn’t write it … by Jane Dayus-Hinch Four weeks ago, I woke up with a headache, which is...

Towards the end of 2022, we passed the milestone of ten years since my husband Ian was first...

I was diagnosed with my first Neuroendocrine Tumour (NET) in 1997, when I was just 24. It was in...

A cancer diagnosis is a lot to get your mind round. It brings a whole new set of complexities to...

  I was diagnosed in May 2019 and can remember thinking “Ok, I think I know what I have ahead...

For any of you who have had the magic words ‘PRRT’ mentioned as part of your treatment & you...

I suppose it all started with a Heart Attack at the end of March 2019. This has since been queried...

Name: Chris Age: 36 Primary Site: Central right Lung Chris's Story Diagnosed in February 2022...

  I’m Leanne, I’m 48 years old and I was diagnosed with Neuroendocrine Cancer in September 2019....

Hello friends. My name is Graham Shankarji Hunt, I'm 73 years old and in retirement, I am a...

My Experiences With CAPTEM Chemotherapy and 10 Tips I was diagnosed with Lung Neuroendocrine...

We are all affected by cancer in some way at some point in our lives. I would be very grateful for...

by Karen Edwards The last 6 months for me have been a rollercoaster of health and emotions. I have...

I was 64 when in February 2020 I was diagnosed with a carcinoid tumour in my left lung. I’d had...

For years I’ve done simple affirmations each morning to help wire the foundation of my internal...

So you have received your diagnosis from your Multi-Disciplinary Team and if, like me, have just...

I was a partner when Neuroendocrine Cancer came into our lives. We had been together for 26 years,...

My Name is Craig Speirs, I’m 41 years old, married to my beautiful wife Angela and I have two...

Name: Judy Age: 69 Neuroendocrine Cancer site: Small Bowel and metastasis to the Liver Judy's...

Introduction For me, Watch & Wait started in 2003.  Watch & Wait is a common support...

Asked if you would like to go on a clinical trial for PRRT (Peptide Receptor Radionuclide Therapy)...

A Long Time … Watching and Waiting I received my diagnosis of ‘Watch and Wait’ in June 2015,...

Name: Paul Age: 55 Neuroendocrine Cancer Site: Pancreas Paul's story: I was struggling with...

Name: Sally Neuroendocrine Cancer Site: Caecum Sally's Story: After feeling so tired and...

Debra (51). Diagnosed February 2021 Rare Rectal Primary with Liver Mets I recall visiting my GP in...

I have never liked rollercoasters, even pushing my children on the park roundabout was enough for...

Reproduced with thanks to Alan, friend of award-winning advocate for the cancer community, Chris...

I was diagnosed with two PNETs (Pancreatic NETs) at the age of 35, one at either end of my...

My name is Christina Nuttall and I'm one of the Nurse Clinicians at The Christie NHS Foundation...

Name: Mel Age: 74 Neuroendocrine Cancer Site: Primary in bowel, secondary liver initially Mel's...

Name: Ranjpreet Supporter: Father has oesophageal Neuroendocrine Cancer. Ranjpreet's Story:   ? My...

OUR EXPERIENCES OF LIVING WITH NEUROENDOCRINE CANCER My husband Ian was diagnosed almost exactly...

I LOVE MY JOB The impact of a cancer diagnosis is life changing, not only for the patient but also...

Name: Kevin Age: 53 Neuroendocrine Cancer Site: Small Intestine / Liver Kevin's Story: I was...

Name: Maxine Neuroendocrine Cancer Site: Small Bowel NOT THE LIFE WE PLANNED …. It was October...

Name: Allison Age: 41 Neuroendocrine Cancer Site: Primary - Pancreas with Lymph Node spread...

Name: Sophie Age: 52 Neuroendocrine Cancer Site: Glucagonoma - pancreas (primary), paraaortic...

Name: Deborah Age: 60 Neuroendocrine Cancer Site: Primary to small bowel. Metastasis to liver....

WORKING WITH CANCER What do you do when your employer is expecting the worst for you ‘just’...

Name: Barbara Age: 58 Neuroendocrine Cancer Site: Lung Barbara's story: November 2019 I was...

Name: Sarah Age: 42 Neuroendocrine Cancer Site: MINEN in colon Sarah's Story: I was feeling pretty...

This is the sort of situation where terminology can trip us up.  I was diagnosed in 2009 with...

Name: Donna Age: 57 Neuroendocrine Cancer Site(s): Primary lung, metastasis to the liver Donna's...

My family and friends got me through this - I cannot emphasise enough how important a support...

Name: Lisa Age: 51 Neuroendocrine Cancer site(s): Primary is unknown and metastasis to the Liver....

I’m Maxine Patterson and seventy-four years old. I was a deputy headteacher, but my first love was...

Hi I’m Martin, 57 years old, long-term Pancreatic Neuroendocrine patient. I guess all good stories...

PURSUING A PARAGANGLIOMA Looking back now, all the pieces fit together. However, at the time it...

Name: Donna Age: 56 Neuroendocrine Cancer site(s): Primary = bowel and Secondary = liver Donna's...

My name is Janet, I am 66 years young and have been diagnosed with NET’s in my bowel, liver and...

I am a Wife, a Mum, a Grandmother, a Sister, an Aunt and of course, a Friend.  How hard was it for...

LIKE BEING HIT BY A BASEBALL BAT I was so shocked when I was diagnosed with a Neuroendocrine...

Being diagnosed with neuroendocrine cancer tips life upside down (as will any type of cancer...

 I found the NETS patient Facebook forum so helpful since my diagnosis in June 2019. Everyone has...

WHEN THE DUST began to settle a little after my Neuroendocrine Cancer diagnosis, I began to look...

Emergency Hospitalisation in October 2020, I had a skin infection and a moderately high temp, and...

Lanreotide and I have been living-in-sin for three years now. Before that, I spent a year with...

 It was June 2018, I was in LA filming season 2 of the TV show Counterpart, pretending to be in...

My name is Tony Attwood. I was diagnosed with Neuroendocrine cancer following abdominal surgery in...

It took 13 years to get a diagnosis. My life saver was being diagnosed as being coeliac. That did...

I am Liz Quaglia and I am the lead nurse for the NET team at the Royal free Hospital. We are a...

I became a Trustee of the then NET Patient Foundation (now Neuroendocrine Cancer UK) in 2012...

Peter helped found the patient support group, ‘Living with Carcinoid’, with his late wife Liddy in...

  Hello, my name is Martin Brown, I am 55 years old, married to Wendy and we have 2...

My name is Sally Jenkins and I am a retired computer systems analyst and lecturer living in South...

I am Dr. Raj Srirajaskanthan, I work as a gastroenterologist and have a specialist interest in...

It was just before Christmas 2017 when I quickly opened the post (on my own, standing in the...

NCUK have invited me and my lovely Dad to share our story of his battle with this awful disease...

Thanks for the invitation to tell about myself for the « Faces of NCUK «  campaign. I am a patient...

I am Professor John Ramage, a consultant physician in gastroenterology and hepatology, honorary...

At the time of my diagnosis almost 10 years ago, I was a busy solicitor working full time and...

Hi my name is Richard. I have 4 kids and live in Essex. Five years ago I was diagnosed with a...

Hi my name is Angie and 14 years ago my mam was diagnosed with a neuroendocrine tumour (NET) and...

Hello, I am Leanne. A mother to a 3 year old, living in Warwickshire. In 2016 I saw an...