Each year in the UK , around 6,000 people are diagnosed with a Neuroendocrine Cancer – and the incidence is rising with ” Latest research suggest an age standardized incidence of above 9 per 100,000 in a study using UK cancer registry data ” (White et al 2020). Despite this increase, in a recent survey of more than 200 people with Neuroendocrine Cancer, less than 5% had heard of it . . . until they were directly affected by it.

Our ‘Faces & Voices of NCUK’ campaign – provides a safe space for those who wish to share their story and a place for anyone affected by Neuroendocrine Cancer to access real-life experiences and advice from those who have experienced it first-hand.

Being diagnosed with cancer is challenging – both physically and mentally. Being diagnosed with a rare/less common cancer can have additional consequences, not least in terms of limited awareness, knowledge, access to early diagnosis and expertise. It can be hard not to feel isolated, afraid, anxious and / or uncertain.

We launched the ‘Faces & Voices of NCUK’ campaign to bring people together – to combat that sense of isolation, help address those difficult feelings and allow space for uncertainty to be talked about. Sometimes there aren’t always answers – but through shared experiences and stories we can, sometimes, find one. . .or two.

Below you can browse various blogs and journals. View photos and read, or watch stories shared by Neuroendocrine Cancer patients, supporters, friends, healthcare professionals and loved ones.

Please note that the stories and opinions posted in the Faces of NCUK and Voices of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.