Supporting the

Neuroendocrine Cancer Community

Neuroendocrine tumours arise from the neuroendocrine cells, which are responsible for producing hormones in our bodies. These tumours can occur in various organs, including the pancreas, lungs, gastrointestinal tract, and other areas. One of the challenges in diagnosing neuroendocrine tumours is that they can manifest with a wide range of symptoms or sometimes no symptoms at all.

Let’s take a closer look at some of the symptoms associated with neuroendocrine tumours. Please note that neuroendocrine tumours don’t always cause signs and symptoms at first. The symptoms you might experience depend on the location of your tumour and whether it produces excess hormones.

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Signs & Symptoms of Neuroendocrine Cancer

Discover information about the signs and symptoms of neuroendocrine cancer, both before and after diagnosis, to better understand and recognise potential indicators of this condition.

The Physical Presence of Cancer

Explore insights into the physical presence of neuroendocrine cancer, including its size, site, and position within the body, to gain a clearer understanding of how these factors can impact diagnosis and treatment decisions.

Pain and Mythbusters

Delve into the complexities of pain associated with neuroendocrine cancer and debunk common myths surrounding its management and treatment options.

Functional Signs, Symptoms and Syndromes

Explore the intricate web of functional signs, symptoms, and syndromes that may arise from the abnormal release of hormones or similar substances by neuroendocrine tumours, affecting various bodily functions and systems.

Carcinoid Syndrome

Learn more about the complexities of Carcinoid Syndrome, a combination of symptoms including diarrhoea, skin flushing, and wheezing, often associated with neuroendocrine tumours.

Carcinoid Crisis Disease

Explore the critical condition known as Carcinoid Crisis Disease, a rare but serious complication of Carcinoid Syndrome, characterised by sudden and severe symptoms, and discover the importance of prompt medical intervention and emergency preparedness.

Carcinoid Heart Disease

Carcinoid heart disease is a rare condition occurring in individuals with carcinoid syndrome. It’s caused by hormones released by carcinoid tumours, leading to structural changes in the heart valves, impairing heart function. Regular cardiac monitoring is crucial for early detection and management.

Syndromes Explained

Syndromes refer to a group of symptoms that consistently occur together and characterise a particular medical condition or disease. These symptoms may include physical signs, psychological manifestations, or biochemical abnormalities that collectively indicate the presence of a specific disorder. In the context of neuroendocrine cancer, syndromes can include a range of symptoms and complications resulting from abnormal hormone production or tumour growth.

Paraneoplastic Syndromes

Paraneoplastic syndromes are rare disorders triggered by an abnormal immune response to a cancerous tumor (often neuroendocrine tumors). These syndromes cause a wide range of symptoms and complications that are not directly related to the tumor’s growth or invasion.

It’s important to remember that these symptoms are not exclusive to neuroendocrine tumours and can be caused by other conditions as well. However, if you experience persistent or unexplained symptoms, it’s crucial to consult with a healthcare professional for a thorough evaluation.

To learn more about neuroendocrine cancer, including its symptoms, diagnosis, treatment, and ongoing research, we invite you to visit our comprehensive webpage dedicated to neuroendocrine cancer. There, you will find in-depth information, personal stories from individuals affected by neuroendocrine cancer, and resources to support you on your journey.

To access the full information about neuroendocrine cancer, please visit:

If you have any questions or would like to share your personal experiences, please reach out to us. We are here for you every step of the way. Together, we can make a difference in the fight against neuroendocrine cancer.

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