Supporting the

Neuroendocrine Cancer Community

Surveys, Research and Petitions

Sharing your views, experiences and feedback about issues affecting you will only take a few minutes. The more people who get involved or sign current petitions will help us to make those critical changes.


Shape the future of Neuroendocrine Cancer UK

(Approx. 15 minutes to complete)  

At Neuroendocrine Cancer UK we want to ensure we continue to meet your needs and support you in the way you want to be supported. Please complete our survey to allow us to do this. 

Genetic Testing of Tumours 

RareCan and partners are exploring genetic analysis services to aid cancer treatment decisions and trial eligibility. This accessible option aims to provide insights into personalised treatment options. Your input is crucial – complete the survey to help assess the feasibility of this service.

Research Studies

OPEN Health are conducting interviews to understand the experiences of people living with neuroendocrine tumours of the gastrointestinal system and pancreas (GEP-NETs).

The interviews are scheduled to take place between April and July 2024.

Online Peer Support in Long-Term Conditions: A team at King’s College London has collaborated with individuals living with long-term physical health conditions to develop a new online peer support platform. They are eager to gather feedback on the new intervention, including likes and dislikes. Interested in participating? Sign up before the end of May to experience it firsthand.


Select the image to learn more.

One Cancer Voice

Petition to the Prime Minister to demand the UK Government keeps its commitment to transform cancer care and services.

Share Your Views or Become Part of a Working Group

We often look for people with experience of Neuroendocrine Cancer to volunteer and take part in focus group discussions and surveys in order to gain insight into patients’ experience of their treatment and care. NCUK strives to be an evidenced-based organisation and your insights allow us to offer real-world evidence when we need it.