Supporting the

Neuroendocrine Cancer Community



Well . . I’d worked myself up to having to deal with treatment and cure or treatment and dying . . . I hadn’t considered there was the possibility of living with cancer . . . that there would be an option of treatment and living with, rather than ‘beyond’ or after cancer.

Looking After Yourself

Cancer can affect your body, your mind and your life in all kinds of ways, so in this section we focus on some of the challenges you might face and ideas that can help you to deal with them.

Emotional Wellbeing

How we think and feel is often influenced by our memories, experiences, relationships, beliefs, those around us, as well as our hopes for and concerns about the future.

Finding Ways to Cope

There are plenty of things you can do to get through bad days, from laughing with friends to working out exactly what’s making you stressed.

Planning for the Future

A diagnosis of Neuroendocrine Cancer is unlikely to be something you envisaged as part of your life plan, however, over time, and with the support you may need, you will find new ways of living with it and the effect it has and may have on your life.

Complementary Therapies

This is not an exhaustive or complete list of the complementary therapies that may help someone diagnosed and living with cancer – but we hope it provides an overview of the more common complementary techniques and treatments available.


Cancer-related fatigue impacts on, or can be a result of, sleep disturbances and affects many people, before, during and after treatment. It can have a seriously debilitating impact on lives, but effective interventions have so far proved hard to find.

Living with Neuroendocrine Cancer - Two Years On

By Jane Aylott.

Living with and Stable

By Ashley Black.

Living with Progression / Recurrence

By Kath Lewis.

Living with the Uncertainty of it all

By Kym Winter.

Living the life of a NET patient

By Craig Spiers.

Becoming your Own Expert

By Ronny Allan.