Supporting the

Neuroendocrine Cancer Community




Our Mission

Our purpose is to support and inform patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating Neuroendocrine Cancer research, increasing national awareness and influencing improvements in outcomes.

Understanding Neuroendocrine Cancer

Neuroendocrine cancers occur when neuroendocrine cells stop working normally and start to grow uncontrollably and / or function abnormally.

Just Diagnosed

Getting diagnosed with Neuroendocrine Cancer can leave you feeling confused and alone, but we’re here to help cut through the confusion and to make it very clear that you’re not on your own.

Living with Neuroendocrine Cancer

Finding a ‘new normal’ and how to adapt to changes has been key in learning to live well with Neuroendocrine Cancer – both physically and emotionally.

Natter Support Groups

Our ‘Natter’ Support Groups are local community based or regional online meetings that offer an opportunity to meet others in your area, who are also affected by Neuroendocrine Cancer.

Stories & Experiences

Browse various blogs and journals. View photos and read, or watch stories shared by Neuroendocrine Cancer patients, supporters, friends, healthcare professionals and loved ones.

Supporting You

Call our helpline: 0800 434 6476
Helpline hours:
Tues – Thur: 10:00am – 4:00pm
General enquiries:

Join our online community

Join our private Facebook groups and talk and help other members by sharing experiences and knowledge. Subscribe to our mailing list for updates and Neuroendocrine Cancer news. Follow us on Twitter and Instagram!

Fundraise for NCUK!

Fundraising is an opportunity to set yourself a challenge, go on an adventure or just do something silly for money! Whatever your idea, make sure it’s something you’ll enjoy doing. There are so many ways to raise funds for NCUK and whether you run a marathon, shave off your eyebrows, skydive or organise a coffee morning!

What we do

Being diagnosed with a rare or uncommon cancer can have additional consequences, not least in terms of awareness, early diagnosis and access to expertise. Feelings of isolation, fear, uncertainty and anxiety are not uncommon.

NCUK exists to address the unmet needs voiced by the Neuroendocrine Cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine Cancers