Welcome to Neuroendocrine Cancer UK

Virtual Handbook

Welcome to our interactive practical toolkit for all those living with neuroendocrine cancer.

Events

Discover upcoming events, webinars, support group meetings, and fundraisers dedicated to raising awareness and supporting those affected by neuroendocrine cancer.

News

Stay up-to-date with the latest advancements, research findings, and community updates.

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Welcome to Neuroendocrine Cancer UK. We are here to provide support, raise awareness, and offer resources for individuals affected by neuroendocrine cancer. Whether you are seeking information, looking for support, or hoping to get involved in our mission, we are glad you’re here. Together, we can make a difference in the lives of those living with this often misunderstood cancer.

Overview of Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer.

Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions.

At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves.

We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease.

Latest News and Updates

Our latest update on PERT – Dec 2024

Our latest update on PERT We have been working with our community and fellow charities to continue to seek solutions to current PERT supply issues. Our collaborative working group of charities and patient organisations continues to meet monthly - here is this...

Support Service hours during December

An update to the timings of our Support Services: December 2024

Neuroendocrine Cancer Headlining the News

NOVEMBER 2024 01/11/2024 Urgent action needed to improve the survival rate of people with rare cancers, campaigners say Campaigners highlight the urgent need for improved diagnosis and care for rare cancers like neuroendocrine cancer – read Dave's story and the call...

UK Government announces commitment to a National Cancer Strategy for England

UK Government announces commitment to a National Cancer Strategy for England Several weeks ago, Neuroendocrine Cancer UK, and fellow charities, co-signed the joint One Cancer Voice letter to the Secretary of State for Health and Social Care, Wes Streeting,...

PERT Update

As some of you may be aware, we are working with fellow charities and patient organisations to ‘lobby’ and work with the government and other stakeholders to better address PERT shortages. Our working group of charities and patient organisations meets monthly, and...

Fair Market Value for Charities in Partnership Work

Charities and patient organisations, like Neuroendocrine Cancer UK, alongside individual patients, play a crucial role in optimising equitable patient care: driving forward, facilitating and supporting, access to expert care, research and innovation. We are often the...

2024 Pump-priming Grants are Now Open

As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, and in collaboration with the United Kingdom & Ireland Neuroendocrine Tumour Society (UKINETS) we are funding 2 pump-priming grants. Funds supporting the grant have been raised by the...

Join our Team – Job Vacancies

27/09/2024 - NEW VACANCY - OPEN Fundraising Manager - SELECT HERE TO LEARN MORE AND APPLY. ---------------------------------------------------------------------- 18/09/2024 - NEW VACANCY - OPEN Freelance Administration Assistant - SELECT HERE FOR FURTHER...

Spotlight on Neuroendocrine Cancer: Campaign Update and Healthcare Professionals’ Series Overview

The ‘Spotlight on Neuroendocrine Cancer’ campaign aims to raise awareness of neuroendocrine cancer among non-neuroendocrine cancer specialist healthcare professionals. The campaign collaborates with the UK and Ireland Neuroendocrine Tumour Society (UKINETS). To enable...

Research Trial – LANTana: RECRUITING

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Get Involved and Make a Difference

Join us in our mission to support those affected by neuroendocrine cancer and advance research and awareness.
There are many ways you can get involved and make a difference.

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Volunteer Become a part of our dedicated team and contribute your time and skills to support patients and families.

Fundraise Organise events, challenges, or campaigns to raise funds for neuroendocrine cancer research and support services.

Donate Your generous donations help us provide essential resources, support programs, and fund vital research initiatives.

Get in Touch

At Neuroendocrine Cancer UK, we’re always here to support you. Whether you need advice, have questions, or want to get involved, our team is ready to assist. You can contact us through our online form, by email, or over the phone. We value your input and are happy to help in any way we can. Don’t hesitate to reach out — we look forward to hearing from you.

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Symptoms

Tests

Newly diagnosed

Treatments

Your cancer site

What is neuroendocrine cancer?

Living with neuroendocrine cancer

How we can support you

NC research and our campaign work

End of life care

View and download our information, guides and factsheets

View our Neuroendocrine Cancer Virtual Patient Handbook