Welcome to Neuroendocrine Cancer UK

Virtual Handbook

Welcome to our interactive practical toolkit for all those living with neuroendocrine cancer.

Events

Discover upcoming events, webinars, support group meetings, and fundraisers dedicated to raising awareness and supporting those affected by neuroendocrine cancer.

News

Stay up-to-date with the latest advancements, research findings, and community updates.

Subscribe to our newsletter

Stay informed with the latest updates, events, and resources by subscribing to our newsletter.

Cakes for a Cause

Host a ‘Cakes for a Cause’ event with your friends and family and help us raise funds and awareness while supporting those affected by neuroendocrine cancer.

Welcome to Neuroendocrine Cancer UK. We are here to provide support, raise awareness, and offer resources for individuals affected by neuroendocrine cancer. Whether you are seeking information, looking for support, or hoping to get involved in our mission, we are here to guide you. Together, we can make a difference in the lives of those living with this often misunderstood cancer.

Overview of Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer.

Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions.

At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves.

We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease.

Latest News and Updates

Rare Cancers Bill Update 8th July 2025

Rare Cancers Bill Update 8th July 2025 Yesterday I had the pleasure and privilege of meeting Scott Arthur MP: and was able to thank him, in person, for his compassionate and inclusive leadership of the Rare Cancers Bill. It was also an opportunity to talk with charity...

URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED

URGENT ACTION NEEDED The impact of cancer is far more than medical. With it, comes a hidden and often devastating financial burden that many do not see or expect: the ripple effect extending to family members and carers. From travelling to receive the right treatment...

PERT Shortages Survey

We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...
Dr. Jules Derks standing in medical uniform

Breakthrough Research Paves Way for Personalised Treatment in Lung Neuroendocrine Cancer

Discover how breakthrough lung research from Dr Jules Derks and Maastricht University is advancing personalised treatment for Lung Neuroendocrine Tumours (Lung NETs), offering new hope through a simple tool that could transform targeted therapies.

Neuroendocrine Cancer in the Daily Express – ‘I had no idea I was dying – and then I found out on the NHS app’

  We are delighted to support the Daily Express Cancer Care campaign ensuring that all cancer patients get access to mental health support both during and after their treatment. Neuroendocrine Cancer UK have had their 3rd article in support of this campaign...

Neuroendocrine Cancer – The Expert Patient: Podcast on neuroendocrine cancer to raise awareness among GPs

As part of our ‘spotlight on neuroendocrine cancer’ campaign which aims to raise awareness of neuroendocrine cancer among healthcare professionals, we have been working with the Primary Care Society of Gastroenterology to raise awareness of neuroendocrine cancer for...

Launching the Neuroendocrine Life Alliance

Neuroendocrine Cancer UK and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are proud to announce the launch of the Neuroendocrine Life Alliance. This exciting new collaboration between Neuroendocrine Cancer UK and the Association for Multiple...
World Hormone Day Graphic

The First-Ever World Hormone Day – Today, 24th April 2025

24 April 2025 – The first World Hormone Day takes place today to raise awareness of the vital role of hormones in rare and chronic disease. Under the banner of #BecauseHormonesMatter, the campaign brings together the global endocrine community to share the small steps...

Advocacy & Policy Updates

Advocacy & Policy Neuroendocrine Cancer UK was founded with the vision of providing support, raising awareness, and driving research for those affected by neuroendocrine cancer. What started as a small community initiative has now grown into a leading charity that...

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...

Get Involved and Make a Difference

Join us in our mission to support those affected by neuroendocrine cancer and advance research and awareness.
There are many ways you can get involved and make a difference.

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Volunteer Become a part of our dedicated team and contribute your time and skills to support patients and families.

Fundraise Organise events, challenges, or campaigns to raise funds for neuroendocrine cancer research and support services.

Donate Your generous donations help us provide essential resources, support programs, and fund vital research initiatives.

Get in Touch

At Neuroendocrine Cancer UK, we’re always here to support you. Whether you need advice, have questions, or want to get involved, our team is ready to assist. You can contact us through our online form, by email, or over the phone. We value your input and are happy to help in any way we can. Don’t hesitate to reach out — we look forward to hearing from you.

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Symptoms

Tests

Newly diagnosed

Treatments

Your cancer site

What is neuroendocrine cancer?

Living with neuroendocrine cancer

How we can support you

NC research and our campaign work

End of life care

View and download our information, guides and factsheets

View our Neuroendocrine Cancer Virtual Patient Handbook