Just Diagnosed

We’re here for you.

We cannot tell you that we know how you feel right now or how you may feel as time goes by…

The main thing to try and remember at this stage is that you really aren’t alone. It’s easy to feel isolated when you find out you have an uncommon condition, but getting the correct diagnosis means you should now have access to the right expert care team who understand your condition and can help.

We hope that many of the questions you may have are answered on this website, but don’t be afraid to ask your care team anything that isn’t – or to give us a call. There really is no such thing as a stupid question – what is important is that you have information you can understand.

Many people find our support groups and Facebook groups a helpful way to talk with others, in similar situations, others who really understand what being diagnosed and living with Neuroendocrine Cancer means.

But please know that we are here for you, and your loved ones, to listen, answer questions, provide information and support, here to help you in dealing with your diagnosis of Neuroendocrine Cancer and what might happen next.

Supporting You

NCUK exists to support patients and their loved ones with the physical and psychological burden of Neuroendocrine Cancers.

Getting The Right Care

Being Prepared

Whether you want to know every detail of what a Neuroendocrine Cancer can mean or would rather your care team just got on with it, there’s a lot to be said for being prepared.