Supporting the

Neuroendocrine Cancer Community

Specialist Care

Welcome to our Specialist Care page, where you’ll find your guide to navigating neuroendocrine cancer care and support.

Here, we cover essential topics such as understanding your rights as a patient, identifying the right specialists, and the significance of a multidisciplinary team (MDT) approach in your treatment journey.

Learn about the role of Specialist Neuroendocrine Cancer Multidisciplinary Team Meetings (MDMs), discover when and where to access specialist services, and explore the support available to you throughout your pathway.

Gain insight into the referral pathway and understand the crucial role of specialised care in optimising your treatment outcomes.

Support for You

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Your Rights as a Patient

As a patient, you have the right to receive high-quality care, be treated with respect and dignity, and participate in decisions about your treatment and care plan. Select the image to learn more.

A Neuroendocrine Cancer MDT
A Neuroendocrine Cancer Multidisciplinary Team (MDT) consists of various specialists, including surgeons, oncologists, radiologists, and nurses, who collaborate to provide comprehensive and personalised care to patients. Select the image to learn more.

Specialist services, where are the right people and when should I see them?
Specialist services ensure that patients receive the appropriate care from the right experts at the right time, whether it’s for diagnosis, treatment, or ongoing management of their disease. Select the image to learn more.

Specialist Centres

We understand that being diagnosed with neuroendocrine cancer can be a challenging and overwhelming experience. That is why it is crucial to receive the best possible care from experts who specialise in this complex type of cancer.

At Neuroendocrine Cancer UK, we recognise the importance of being seen by a neuroendocrine specialist who understands the unique needs of patients with this condition. That’s why we’ve listed all of the Centres of Excellence and Neuroendocrine Cancer Multidisciplinary Teams and Clinics around the UK on this page.

We believe that every patient deserves access to the best possible care, regardless of their location or circumstances. By providing this comprehensive list of specialist centers, we hope to make it easier for patients to find the expert care they need and deserve.

We encourage you to explore this page, learn more about the various specialist centers and clinics, and take the first step toward receiving the best possible care for your neuroendocrine cancer.

It is impossible to overstate the importance of patient care under one of the UK ‘NET’ Centre of Excellence or a UKINETs recognised specialist service with a fully dedicated MDT, clinic and infrastructure.

‘NET’ Centres of Excellence have experienced teams who regularly see patients with neuroendocrine cancers, including Lung NETs. As a consequence, they are in the best position to offer the most up-to-date follow-up and treatment protocols.”

Centres see patients with both neuroendocrine tumours (NETs) and neuroendocrine carcinomas (NECs) – and some offer further specialisation including the management and care of Carcinoid Heart Disease.

They are also more likely to have clinical trials available which offer patients more choice compared to clinics outside of this setting; eg General Oncology, . . . Furthermore, as the landscape for neuroendocrine cancer diagnosis and management changes rapidly – it is extremely important that real-world data/outcomes / experience are shared and collated so that we can ensure meaningful progress is made for patients suffering from these varied cancers. This progress in development, through collaboration and information sharing, will best happen through accredited ‘NET’ Centres of Excellence.

Professor Was Mansoor

The Christie NHS Foundation Trust Manchester

Getting Access to the Right Care

If you’ve been diagnosed with neuroendocrine cancer, it’s essential that your case is reviewed by a specialised, accredited “NET” specific Multi-Disciplinary Team (NET MDT) regularly.

In this guide, we provide a list of current experts, clinics, and Centres of Excellence, along with information on how to obtain a referral to one of these centres. You’ll also find guidance on how to best prepare for your appointments, including speaking with your doctor, and a list of useful questions to ask during your appointments.

Click the button below to download and print our list of useful questions for your appointments.

Select play to watch Christina Nuttall and Dr. Melissa Frizziero from The Christie Hospital as they demystify Multidisciplinary Team Meetings (MDTs) in cancer care, specifically neuroendocrine cancer care. In this enlightening presentation, they clarify what an MDT is, who comprises the team, the topics covered, including treatment options, and provide a detailed case study.

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