Supporting the

Neuroendocrine Cancer Community

Local Support Groups

“Because there’s nothing more comforting than someone who actually gets it. Really gets it”.

How has COVID-19 affected our face to face groups.

Due to impact of COVID19 pandemic 2020, there have been restrictions on social gatherings – to maintain ongoing support through our groups, we have been, and will continue, to hold our Natter Groups online, until further notice. 

If you would like to take part then please contact Nikie for further details.

Our ‘Natter’ Support Groups are local community based or regional online meetings that offer an opportunity to meet others in your area, who are also affected by Neuroendocrine Cancer; you, your family, friends and supporters.

Our groups are facilitated by a fellow patient, NCUK staff or ambassador, Neuroendocrine Cancer Clinical Nurse Specialist and / or local volunteer.

In accordance with NCUK’s guidance – each group agrees its own format and frequency –  and is run as informally or formally as group members agree.

  • All groups offer refreshments
  • All groups are free to attend
  • All group members have free access to NCUK resources and support services

Please note : confidentiality and respect for each other’s privacy is an absolute requirement of attendance and continued participation.

Find a Natter near you

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View our Natter Calendar

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Join a Virtual Natter Group

Due to impact of COVID19 pandemic 2020 we have been holding our Natter Groups online.

If you would like to take part then please contact Nikie for further details.

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Become a Natter Coordinator

We are always looking for volunteers to host Natter groups. Sign up today. 

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“This group is so friendly and so genuinely caring that people are prepared to talk openly about things they may not have said to anyone else . . .  and I just think that’s a wonderful atmosphere that’s produced here in the group.”

“One of the most striking things has been the laughter . . .yes we’ve cried, talked about all manner of things, but  . . . yes laughter has been a big part . . .some of my friends don’t get that  . . .that we laugh at these groups . . .”

“The education side, the ongoing updating of good information. That’s really important it gives you a better understanding . . .my team is brilliant, but the clinic is so busy, you’re very aware of time . . . at the group you can ask questions, talk things through a bit more at your own pace . . .”

    “It gives you the control back  . . . that’s one thing you lose when you’re diagnosed.

    You try and get back the self confidence you lose, you think ‘I’m sick’ then you get into a group like this and you start to gain a bit of self-management back”

    Joining a support group for the first time can be a bit nerve-wrecking, you may not know what to expect or be worried about being asked to share personal issues with people you don’t know.

    You may find it helpful at the start to simply listen – if you feel comfortable to share your own ideas and experiences please do – but you should never feel coerced or uncomfortable.

    If  you have joined a group and it doesn’t feel like a good fit for you, consider joining a different group or a different group format e.g. join us online.

    If you don’t think a face-to-face support group is appropriate for you, but need support in coping with your condition or situation, you can talk to your specialist team or us about counselling or other types of help that may be available.

    About Us

    Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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    Holly House, 74 Upper Holly Walk, Leamington Spa CV32 4JL