World Neuroendocrine Cancer Day is an opportunity for everyone around the globe who has been affected by Neuroendocrine Cancer in some way, to come together, on one dedicated day, to make some noise and share the messages that are so vital for the whole community.
The day belongs to and is coordinated by the International Neuroendocrine Cancer Alliance (INCA). INCA calls this day ‘NET Cancer Day’.
INCA is the global voice for Neuroendocrine Cancer patients and carers with a mission to: raise awareness about all types of Neuroendocrine Cancer; push for scientific advancements with a focus on identified unmet needs; and to provide a platform for global collaboration to address the many challenges Neuroendocrine Cancer patients and the medical community face, in securing a timely diagnosis and accessing optimal treatment, support and care.
INCA represents 26 member organisations from 22 countries located around the globe.
What NCUK did on World Neuroendocrine Cancer Day 2021
1. We supported INCA in their campaign around earlier diagnosis and asked that everyone joined in.
Know the symptoms. Push for diagnosis.
2. We encouraged everybody to order our Symptom Awareness cards and distribute to local GP practices or Healthcare Providers.
What is the Awareness Card?
Neuroendocrine Cancer UK has produced informative awareness cards, which we would like to pass on to as many GPs in the country as possible. We hope that these cards will have some impact on raising awareness of Neuroendocrine Cancer as a diagnosis and encourage referral to a relevant Neuroendocrine Cancer clinic. We know that having an effective multidisciplinary team including a nurse specialist is so vital for the patients and their families.
3. On the lead up to the day we released a daily video, as part of our NCUK Virtual Summit. Here we showcased talks from patients who are living with Neuroendocrine Cancer. We discussed topics that some may find difficult or emotive and also include practical advice from specialists in finance and social benefits.
4. As part of our Bridging the Gap Campaign, on World Neuroendocrine Cancer Day, we shared our ‘Faces and Facts‘ video for members of the community to share and help us raise awareness.