Supporting the

Neuroendocrine Cancer Community


Resources & Videos


We make sure our information is accurate and up-to-date by using the latest evidence from research and clinical guidelines. However, our information does not replace the advice of your healthcare team. All of our information is regularly updated. We try to make our information as clear as possible by writing in plain language and explaining medical words. 

We use our medical advisory board to check our information for medical accuracy, and patients and supporters to check that our information makes sense and answers all their questions. 

Due to the current lockdown our patient information is available to download only.

In order to save costs and the environment, if you can, please download and read our patient information online, rather than ordering paper copies. Thank you.

Your Guide to Life with Neuroendocrine Cancer Handbook

Neuroendocrine Cancer – When you are First Diagnosed Leaflet 


Our Neuroendocrine Cancer type specific Factsheets focus on diagnosis, treatment and follow up.

For Site Specific Information click here.

Gut Surgery – How Diet can Help

This guide has been developed to ensure Neuroendocrine Cancer patients have access to reliable dietary information before and after surgery to the digestive system. 

Lung Handbook

Your personal guide to living with Neuroendocrine Cancer of the Lungs.

Emergency Wallet Cards

We have produced handy cards to keep in your wallet in case of emergency. We have three emergency wallet cards available: A toilet card, a bowel obstruction card and a carcinoid crisis card.

Wallet cards availble when the  national lockdown has been lifted and we return to the office.


ACC Support UK is a joint venture between AMEND and Neuroendocrine Cancer UK. Together we provide information resources and support services to Adrenocortical Cancer (ACC) patients and their families and carers in the UK.  


About Us

Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.


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