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Neuroendocrine Cancer Community

Neuroendocrine Cancer Headlining the News

Jun 5, 2024

JUNE 2024

05/06/2024

Image – The Sun

‘TOUGHEST FIGHT OF MY LIFE’ 

I thought my back hurt from sitting badly at my desk at work – now I’ve got incurable cancer

A MUM who thought her back pain was from sitting at a desk all day was later diagnosed with incurable cancer.

Izzie Collins spent months putting her constant aches down to poor posture and being stationary for too long.

But in April 2024, the 30-year-old was delivered the life-changing news that she has stage four neuroendocrine tumours.

These develop in cells of the neuroendocrine system and affect around 6,000 people every year in the UK.

SELECT HERE TO READ THE FULL ARTICLE.

03/06/2024

Witney man to take on marathon with trolley and mannequin

Witney man who was diagnosed with a rare form of cancer is set to take on a unique marathon for charity.

Steve Rance, who was diagnosed with Neuroendocrine Cancer in 2021, has decided to walk 26.2-miles around his hometown of Witney.

He will push a shopping trolley carrying ‘Cedric,’ a mannequin complete with flying goggles and a moustache, on June 8.

He is raising funds for Neuroendocrine Cancer UK and Cancer Research UK, and has already amassed £3,183.72 of his £5,000 goal.

Read the full article here: https://www.oxfordmail.co.uk/news/24352008.witney-man-take-marathon-trolley-mannequin/

Donate here: https://www.givewheel.com/fundraising/3172/steve-cedric-are-off-their-trolley/

MAY 2024

16/05/2024

NHS approves ‘invaluable’ treatment for liver cancer which can help speed up recovery

Campaigners welcome decision by National Institute for Health and Care Excellence

An “invaluable” treatment for liver tumours which experts say can help speed up recovery times and provide better quality of life for patients has been approved for use by the NHS.

Cancer charity Planets has welcomed the decision by the National Institute for Health and Care Excellence (NICE) to make selective internal radiation therapy (SIRT) available for patients with neuroendocrine tumours (NETs) in the liver.

SELECT HERE TO READ THE FULL ARTICLE.

MARCH 2024

07/03/2023

Hollywood producer Sean Stone has died aged just 31 following a battle with cancer

Hollywood producer who worked on action films starring Bruce Willis and John Travolta passes away after neuroendocrine cancer battle

Sean Stone dies aged 31: Hollywood producer who worked on action films starring Bruce Willis and John Travolta passes away after cancer battle

  • Stone passed away on Tuesday at Robert Wood Johnson University Hospital in New Brunswick, New Jersey 
  • He was diagnosed with metastatic neuroendocrine cancer of the colon in July 
  • Stone produced upcoming John Travolta film Cash Out and its sequel 

SELECT HERE TO READ THE FULL ARTICLE.

JANUARY 2024

4 January 2024

Ruth Hitchcock Daily Dip for Dave Falmouth beaches

DECEMBER 2023

1 December 2023

NBC host Antonia Hylton, 30, reveals she was diagnosed with rare cancer after IGNORING her symptoms for TWO YEARS – as she urges others not to dismiss warning signs – Daily Mail

SELECT HERE TO READ THE FULL ARTICLE

NOVEMBER 2023

27 November 2023 – Lorry driver Alex Watson from Tunbridge Wells credits a rare, symptomless tumour for saving his life, as it led to the early detection of neuroendocrine cancer in his pancreas. Initially misdiagnosed with allergies, Alex’s condition worsened, revealing the cancer through jaundice. The tumor, although rare, caused noticeable symptoms due to its location, prompting timely medical attention. After a Whipple procedure in October, Alex is in recovery and plans to host a fundraising music event for Neuroendocrine Cancer UK. His story emphasises the importance of seeking medical help when things don’t feel right. Alex is fundraising for Neuroendocrine Cancer UK – You can support his event here: https://www.gofundme.com/f/alexs-neuroendocrine-cancer-charity-music-event

SELECT HERE TO READ THE FULL ARTICLE.

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 15th November 2023

“Soles brave coals for cancer charity”

A dad from Elderslie on a mission to raise awareness about the rare cancer that’s been afflicting him for a decade marshalled a troupe of almost 100 brave volunteers to step across hot coals for charity. Ambassador Craig Speirs and some of the Neuroendocrine Cancer UK team took on an exciting albeit terrifying challenge of firewalking this week, raising a whopping £43,000 for Neuroendocrine cancer research. Craig let the charge, bravely stepping across the hot coals first. “It was important that I step up and lead the way across,” said Craig. “As I stood there looking at the fire, I went back to what we had been taught. What was my reason to cross the fire? Let’s break that barrier and walk across something that people have been telling me for months that i’m crazy for doing it.”   ——————————————————————————————————-   15th November 2023

Leamington Spa cancer charity raises £35,000 with virtual trek across UK

Local cancer charity Neuroendocrine Cancer UK (NCUK) completed a six-month virtual fundraising initiative, the Neuroendocrine Cancer UK Virtual Pathway Challenge, finishing at the Neuroendocrine Cancer Centre of Excellence, University Hospitals Coventry and Warwickshire.
The Virtual Pathway Challenge has surpassed all expectations by raising an impressive £35,000 in support of essential neuroendocrine cancer research.

Over 50 dedicated participants have collectively covered almost 50,000 miles through walking, running, and cycling, symbolically traversing the length of the nation. The journey began in Scotland, winding through Northern Ireland, Wales, and England, with participants stopping at each neuroendocrine cancer centre and clinic along the way. –

– The concluding leg of the challenge took place today, starting at the NCUK head office in Leamington Spa and concluding at University Hospitals Coventry & Warwickshire.
Maria Page, a neuroendocrine cancer patient, expressed the significance of research for this prevalent cancer: “I have first-hand experience with the fears and anxieties that accompany a neuroendocrine cancer diagnosis. Living with an invisible condition, I, like many others, have had to conduct my own research and become my own advocate.”

Neuroendocrine Cancer ranks as the 10th most prevalent cancer in England and the second most common cancer of the gastrointestinal tract. Shockingly, from 1995 to 2018, the incidence of Neuroendocrine Cancers in England surged by an astonishing 371%, surpassing the 116% rise in all other cancers combined.

The success of the Neuroendocrine Cancer UK Virtual Pathway Challenge not only highlights the dedication of participants but also underscores the urgent need for continued research and support in the battle against neuroendocrine cancer.
NCUK extends its gratitude to everyone involved and encourages ongoing awareness and fundraising efforts to make a lasting impact on the fight against this formidable disease. Read the full article here

JULY 2023

5 July 2023 “Elderslie man who is battling rare cancer to take on challenge”

Neuroendocrine Cancer UK’s Ambassador, Craig Speirs is fighting against a rare form of cancer known as neuroendocrine cancer. He aims to raise £100,000 to support others who suffer from the same condition. Through various charity events, including two Kiltwalks, Craig has already gathered £54,000. He plans to host a firewalk at Johnstone Bowling Club to raise the remaining amount. Neuroendocrine cancer affects only seven out of 100,000 people, and Craig has been living with it for a decade. He has undergone two heart operations and relies on weekly nurse visits for medication assistance. Craig shares his experiences at medical conferences, participates in support groups, and receives treatment at the Beatson West of Scotland Cancer Centre. As there is no cure for his stage four cancer, Craig hopes to contribute to research efforts for neuroendocrine cancer. Having left his job due to the demanding treatment, his main focus is spending more time with his 14- and seven-year-old children. The firewalk is scheduled for November 10, coinciding with International Neuroendocrine Cancer Awareness Day. Craig and his friends aim to recruit 100 participants to walk on hot coals, raising awareness and funds for the cause.

READ THE FULL ARTICLE HERE: https://www.the-gazette.co.uk/news/23634572.elderslie-man-battling-rare-cancer-take-challenge/?ref=wa

The Race of Remembrance is motorsport’s tribute to the fallen and a chance for veterans to team up for a common cause. It’s a truly special event, over a special weekend, in which Nik Berg was honoured to take part. Read the full article here

JULY 2022

Sun, 10 July 2022 “Cancer charity exposes ‘scandal’ of patients being denied travel insurance”.

Fantastic to see PLANETS continue the fight for fair travel insurance for the neuroendocrine community. For years there has been inequity, despite work done to educate insurance companies, talks given,  and explanations of neuroendocrine shared… please sign this petition and maybe this time we can see some positive change. Read the full article here

A retired firearms officer who was diagnosed with a rare type of cancer is giving his backing to a new appeal which aims to help others in his position.

Read the full article here