Patient
support groups.
Connect with others affected by neuroendocrine cancer
Living with neuroendocrine cancer can be challenging, but you don't have to face it alone. Our support groups offer a welcoming space to meet others affected by neuroendocrine cancer, share experiences and find understanding and support.
We offer a range of face-to-face and online groups for people with neuroendocrine cancer, as well as their families, friends and carers. All our support groups are free to attend.
Local support groups
Our local support groups bring people affected by neuroendocrine cancer together, either face to face or online. Meetings take place in a variety of settings, including specialist centres, local community venues and online via Zoom. You’re welcome to join any local support group, regardless of where you’re receiving your care.
Led by Neuroendocrine Cancer UK staff or community facilitators, these groups offer opportunities to:
- Meet others who understand what you’re going through
- Share experiences, challenges and successes
- Exchange practical tips and offer mutual support
Our local support groups
England
East of England:
- Letchworth (in person)
London:
- Royal Free (in person)
- Hammersmith (in person)
Midlands:
- Birmingham (in person)
- Coventry (in person)
- Leicester (in person)
- Nottingham (in person)
- Stoke (hybrid – in person and online)
- Worcester (in person)
North of England:
- Manchester (in person)
- Newcastle (in person)
South of England:
- Amersham (in person)
- Bristol and Bath (in person)
- Cheltenham (in person)
- Exeter (in person)
- Hastings (in person)
- Horsham (in person)
- Oxford (in person)
- Plymouth (in person)
Yorkshire and Humber:
- Leeds (in person)
- Sheffield and Rotherham (in person)
Northern Ireland
- Belfast (in person)
Scotland
- Aberdeen (online)
- Edinburgh (in person)
- Fife (in person)
- Glasgow (in person
Wales
- Cardiff (in person)
- Carmarthenshire (in person)
- Rhyl (in person)
- Swansea (in person)
Regional support groups
Our regional support groups meet online via Zoom every three months, helping people connect across wider geographical areas.
Our regional groups are:
- Northern Ireland (online)
- Inverness and highlands (online)
- Kent (online)
Focused online support groups
Our focused online support groups bring together people with shared experiences, diagnoses or circumstances. They meet every three months via Zoom.
Support groups by cancer type:
- Bowel: for people diagnosed with a neuroendocrine cancer originating in the small or large bowel, appendix or rectum, including those who have had their primary tumour removed.
- Pancreatic and duodenal: for people diagnosed with a neuroendocrine cancer originating in the pancreas or duodenum, including those who have had their primary tumour removed.
- Lung: for people diagnosed with a neuroendocrine cancer originating in the lung, and those with diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH).
Other support groups:
- Chat with Kate: for anyone affected by neuroendocrine cancer, this relaxed and welcoming session is a safe space to share your thoughts, ask questions and connect with others who understand
- Young(er) ones: for people affected by neuroendocrine cancer who are under 50.
- Family and friends: for family members, friends and carers of people with neuroendocrine cancer. (Please note that this group meets every other month rather than every three months.)
UK-wide online support group
Our UK-wide support group offers an opportunity to connect with others affected by neuroendocrine cancer, wherever you live.
Meetings take place every three months via Zoom and are facilitated by members of our support team. You can share experiences, exchange practical advice or simply listen to others.
Information and education events
We also hold online information events covering different aspects of neuroendocrine cancer and its care. These sessions feature expert speakers and are open to patients, families and friends.
They offer opportunities to learn more about topics relevant to neuroendocrine cancer, hear from healthcare professionals and ask questions.
Find a support group or event
You can find dates, locations and registration details for upcoming support groups and webinars in our events calendar.
If you have any questions or need help finding a suitable group, please contact us.
View our calendar for all support group events
Events
Support Group – Royal Free Hospital – London
Facebook groups (online forum)
We also have four Facebook groups where people affected by neuroendocrine cancer can connect and share experiences online.
- Neuroendocrine Cancer UK – Support for Patients and Their Loved Ones
- Neuroendocrine Cancer UK – Patient Only Group (UK)
- Neuroendocrine Cancer UK – Family & Friends Support (UK)
- Neuroendocrine Cancer UK – Global
You can request to join the group that best suits your circumstances.
Frequently asked questions about attending support groups
What can I expect from a support group?
Support groups offer an opportunity to meet others affected by neuroendocrine cancer, share experiences and find mutual understanding and encouragement. Meetings may include informal discussions, practical advice or talks from guest speakers, depending on the group.
Do I have to talk about my experiences?
No. You're welcome to listen without sharing your own experiences. You can participate as much or as little as you feel comfortable with.
Can family members, friends and carers attend?
Many of our groups welcome family members, friends and carers, and we also offer a dedicated online group for them. Some groups are intended for particular audiences, so check the event details before registering.
What is peer support?
Peer support means sharing understanding, encouragement and practical advice with others who have similar experiences. It can help people feel less alone and learn from one another. Peer support complements, but does not replace, medical care or professional support.
Are support group discussions confidential?
We ask everyone attending our groups to respect other people's privacy and keep personal information shared during meetings confidential.
How do I join an online support group?
Our online groups take place on Zoom. You can join using a computer, tablet or smartphone, or by telephone.
If you're unfamiliar with Zoom, our Zoom help sheet explains how to get started. You can also contact our support team if you need help.
Can I attend more than one support group?
Yes. You're welcome to explore different groups to find the support that best suits your needs.
Is there a cost to attend?
No. Our support groups are free to attend, thanks to the generosity of people who donate to support our work.