For healthcare
professionals.
Clinical information, guidance and resources to support neuroendocrine cancer care
Neuroendocrine cancer can be challenging to recognise, diagnose and manage. We’re here to support healthcare professionals with practical, accessible resources to help build knowledge, recognise potential symptoms, support people living with neuroendocrine cancer and improve patient care.
Explore our resources below, including clinical and educational guides, patient case studies, mental health support, professional development and information about our research and support services.
Practical guides for healthcare professionals
Overview of neuroendocrine cancer
As part of our ‘Spotlight on Neuroendocrine Cancer’ campaign, in partnership with the UK and Ireland Neuroendocrine Tumour Society (UKINETS), we have created a series of neuroendocrine cancer overviews for healthcare professionals to raise awareness of neuroendocrine cancer and act as bite-size practical educational aid to support patient identification.
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Symptom awareness cards
Our GP symptom awareness cards are an essential tool for raising awareness of neuroendocrine cancer and encouraging early diagnosis. By downloading and distributing these cards to local clinics and GP practices, you can help make a real difference to earlier recognition of this cancer.
We aim to ensure that more people get diagnosed and treated early, and you can play a part in achieving this goal. Ordering and sharing these cards is a simple yet effective way to spread awareness of neuroendocrine cancer and improve lives.
Mental health support for your patients
In collaboration with Rareminds, Neuroendocrine Cancer UK presents Conversation Openers, an initiative born from our Open Conversations report on neuroendocrine cancer and mental health. Launched in 2022, the report underscored the critical need for healthcare professionals to engage in open dialogues with neuroendocrine cancer patients and their families regarding mental health concerns.
Recognising the unique psychosocial challenges faced by individuals with neuroendocrine cancer, Conversation Openers provides healthcare professionals with practical communication strategies to navigate discussions about mental health effectively. As part of our ongoing ‘Spotlight on Neuroendocrine Cancer’ campaign, these videos offer insights into integrating mental health considerations into routine care and initiating sensitive conversations with patients.
Find out how Neuroendocrine Cancer UK can support your patients
Patient case studies
These patient case studies are a series of videos taking the format of a Q&A between a medical student and three patients living with neuroendocrine cancer. They share their personal stories of being diagnosed (their symptoms, how they presented, investigations and treatments). There is also a video by a specialist neuroendocrine cancer consultant summarising the three patient cases.
They are part of our ongoing ‘Spotlight on Neuroendocrine Cancer’ series, a collaboration between Neuroendocrine Cancer UK and UKINETS to raise awareness of neuroendocrine cancer among healthcare professionals.
Our patients
- David presented at the age of 27 with a lymph node metastasis. He has metastatic small bowel neuroendocrine tumour. He also has carcinoid syndrome.
- Linda’s neuroendocrine tumour was found incidentally when she was being investigated for a separate thyroid condition.
- Peter’s neuroendocrine cancer presented as a lump in his arm, even though his primary tumour is in his pancreas.
Explore more stories from our community
Patient resources
Our patient resources are designed to assist healthcare professionals in providing comprehensive care for individuals affected by neuroendocrine cancer, empowering them with valuable information about their disease and available support services.
Order patient resources here.
Find out more about patient resources
Clinical guidelines
Clinical guidelines and guidance can support healthcare professionals in the diagnosis, treatment and ongoing management of neuroendocrine cancer.
UKI NETS provides practical UK-focused clinical guidance across a range of aspects of neuroendocrine cancer care.
European Neuroendocrine Tumor Society (ENETS) publishes clinical guidance and standards of care developed by multidisciplinary experts, covering the diagnosis, treatment and follow-up of neuroendocrine neoplasms.
Professional development
RCGP learning neuroendocrine neoplasms course
In an average practice of 10,000 patients, approximately five patients will be living with and beyond a diagnosis of neuroendocrine neoplasm (NEN).
This course aims to increase the primary care clinician’s knowledge of neuroendocrine neoplasms, thereby improving the time to diagnose and manage patients with NENs. Throughout two modules we will discuss the types of NENs, common presenting symptoms, the challenge their diagnosis presents, and the importance of primary care input following diagnosis.
An educational grant was received from Neuroendocrine Cancer UK for the production of this resource. Educational content was supported by NCUK but final editorial and content decisions were made by the Royal College of General Practitioners (RCGP).
Medics 4 Rare Diseases course
Did you know that 1 in 17 people are affected be a rare disease in their lifetime? Rare Disease 101 is aimed at medical professionals with little prior knowledge in rare disease. This eight-lesson module covers the basic principles of what rare disease is, how you may suspect a rare disease, challenges faced by those living with a rare disease and how to support them.
Research grants
Our research grants aim to improve the lives and experiences of people with neuroendocrine cancer.
Find out about research funded by Neuroendocrine Cancer UK
On this page
We’re here for your patients.
Our range of information, support and services helps people affected by neuroendocrine cancer navigate their diagnosis and beyond. Encourage your patients to connect with us to find the support that’s right for them.
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