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The Invisible Cancer Podcast

Fairylights & Flat Batteries – Kym Winter, CEO at Rareminds

By: Neuroendocrine Cancer UK

Posted on: 2 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know.

In anticipation of the festive period, the new year and everything that these months entail, Kym and Cathy discuss the pressures and expectations of this time of year and how those living with neuroendocrine cancer can navigate festivities whilst experiencing disruptive or difficult symptoms and emotions.

We also have a webinar available on this topic, which includes discussion on managing fatigue at this time of year.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Find out about support that is available to you

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.

Read more stories from people 
affected by neuroendocrine cancer, 
sharing their journeys, hopes and advice.

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