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← Stories from our community

Families, friends and carers

Rajpreet, Supporter

By: Leanne Talbot

Posted on: 5 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Name: Ranjpreet

Supporter: Father has oesophageal Neuroendocrine Cancer.

Ranjpreet’s Story:

 

My father has been diagnosed with NET of the oesophagus which is rare and I’ve not heard or read much on this. It all started after his valve repair and bypass heart surgery where he was getting pains in his chest. Doctors put it down as post op pain but it got worse and started developing swallowing issues and later on couldn’t keep food down.

 

We noticed he started to lose a lot of weight and was feeling very weak which lead to B12 injections being administered. After internal scans the docs noticed something didn’t ‘look right’ and put it down as cancer. At that point they were unaware of what type and stage.

 

After appointments with oncologists they found it was at stage 3 and now maybe stage 4 as there is now growth in his kidneys. As his food pipe had started to narrow severely and couldn’t take any liquids, they have started chemotherapy urgently and is now on day 2. Everything has happened so quickly and it’s tough trying to keep up and process it all! But glad they are starting treatment and monitoring the situation.

 

Do you have any useful hints and tips that you would like to share?

 

FaceTime and call when you can, join a support group at your workplace if they have one, keep loved ones updated and most importantly take time to switch off and have time to yourself ❤️

 

Thank you for sharing Rajpreet.

 

Whether you’re a patient, supporter, carer or healthcare professional – we’d love to hear from you.

 

Share your story here ➡️ https://www.neuroendocrinecancer.org.uk/stories-from-our-community/

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

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Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Find out about support that is available to you

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.

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