Judy, Patient

By: Leanne Talbot

Posted on: 5 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Name: Judy

Age: 69

Neuroendocrine Cancer site: Small Bowel and metastasis to the Liver

Judy’s Story:

I was first diagnosed with Neuroendocrine Cancer in 2019 which came as a shock, as I had just been diagnosed with Breast Cancer again after a 12 year break, but this time a more aggressive Cancer (Spindle Cell).

It was after I had a bad reaction to my Breast Biopsy that something else was suspected! After 3 months of tests I was diagnosed with Neuroendocrine Cancer which was just after Christmas. I also had ongoing treatment for the Breast Cancer which included 2 removals of tumours from my left Breast culminating in a Mastectomy in that Breast plus Radiation treatment and being put on Lanreotide Injections every 4 weeks, now 3 weeks, to keep the Neuroendocrine at bay.

All this during Lockdown, quite scary! I overcame the Breast Cancer again, so far anyway, so that was a tremendous relief so now I could concentrate on overcoming the Neuroendocrine Cancer! I have a good nurse, Graham Dilkes, he gives me my injections and answers my questions. I have a CT Scan every 3 months and blood and Urine tests and have felt well and have been having regular walks, countryside and beach with family and friends and have been quite happily living my normal life.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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