“Fourteen years ago, when I was first thrust as a new patient advocate into the world of rare cancers – following my son’s diagnosis of a brain tumor – I found it to be as lonely and terrifying a landscape as you could ever stumble into.

At that time, I felt that rare cancers occupied a place on the cancer map which was cloaked in half light and shadows and which was an isolated and arid region, desperately crying out for the rain of more research and the sunshine of hope.

Today, however, that landscape is changing and rare cancers are now the focus of an improved level of attention.” – Kathy Oliver