Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
ENETS attendance and Helpline hours
Helpline closure: Wednesday 5th March 1-4pm and Thursday 6th March 10am – 4pm As some of our team will be attending the European Neuroendocrine Cancer (ENETs) conference 5th-7th March, this will have an impact on our Helpline availability this week. We attend ENETs to...
Private Members Bill on Rare Cancer – please write to your MP
Dr Scott Arthur MP (Lab, Edinburgh SW) has introduced a Private Members Bill on Rare Cancers that sets out to raise awareness and tackle some of the issues facing research and clinical trial availability and access within the rare cancer community. It includes three...
Not Just NE Cancer podcast – New episode release
If you've been following the Not Just NE Cancer podcast series, you'll know that our host, Cathy has spoken to a whole range of different guests, including experts in the world of neuroendocrine cancer and wider healthcare as well as neuroendocrine cancer patients and...