About the survey
Cancer52 ran an online survey of people with rare and less common cancers during June 2020. Respondents were recruited via member charities’ networks and communications. Since respondents were found via Cancer52’s member charities, respondents to the survey are more likely to be using the support of charities and more likely to have been diagnosed some time before the pandemic began.
The UK and the Republic of Ireland run the only formal national programme for liver transplantation in patients with neuroendocrine tumours, and evidence shows those transplanted ...
Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. ...