Researchers are developing a new questionnaire designed specifically for people living with pancreatic neuroendocrine tumours (PanNET). The aim is to better understand the issues that matter most to patients and how PanNET affects quality of life. 

This new questionnaire, called the PANNET module, will help ensure that future research and care reflect the real experiences of people living with this condition. 

We are inviting people who have been diagnosed with pancreatic neuroendocrine tumours to take part in this short survey. It should take no more than 20 minutes to complete, and your input will directly contribute to improving how quality of life is measured for PanNET patients. 

You can complete the questionnaire using a phone, tablet, or laptop. If you are interrupted, you can pause the survey and return to it later. 

Please note that the questionnaire is currently only available in English, so we ask that only people with a good understanding of English take part at this stage. 

Your experience can make a real difference 

Every response helps researchers better understand what living with PanNET is really like and ensures that future studies, treatments, and care consider the issues that matter most to patients. 

Click the link to take part in the questionnaire. 

https://winchesterpsychology.qualtrics.com/jfe/form/SV_aW4ddeuPfeYIHRQ  

Thank you for helping ensure that the voices and experiences of people living with PanNET are represented in future research and care. 

Note: This survey is run by external researchers. NCUK is sharing it to support research that may benefit the neuroendocrine cancer community but is not responsible for the survey content or data collection.