Supporting the

Neuroendocrine Cancer Community

INCA Announces New Research Patient Advocates

Feb 22, 2021

Neuroendocrine Cancer UK is delighted to announce that one of our Ambassadors, Kate Quirk, has just completed the first Research Patient Advocates training course run by INCA (the International Neuroendocrine Cancer Alliance).

Kate joined 18 other members of our international community – from 6 continents – to take part in the course, which is designed to develop the skills of Research Patient Advocates.

The 9-month online course is managed by the INCA Research Committee, and aims to educate leading Neuroendocrine Cancer patient advocates, who will go on to further share their knowledge within their own communities.

The course covered such topics as how medicine development works, statistics and why they matter in advocacy, the importance of PRO’s (patient reported outcomes) and QoL (quality of life) measurements, patient advocacy in action, community advisory boards and how to access and influence research for new clinical trials.

Kate said: “It was a wonderful opportunity to share knowledge and learn from each other. One of the core pillars for INCA is Neuroendocrine Cancer research and we hope that, together, we can encourage unique and practice-changing trials with our medical professionals and pharmaceutical partners.

“It’s vital that we increase quality research, earlier diagnosis and ultimately one day a cure for our global Neuroendocrine Cancer community.”

Kate is also the Patient Rep for the PET-CT Academy at The Christie, Manchester.