Supporting the

Neuroendocrine Cancer Community

Medical Experts and Patients Working Collaboratively and Speaking the Same Language

Apr 20, 2023


The International Neuroendocrine Cancer Alliance (INCA) and the European Neuroendocrine Tumour Society (ENETS) held a symposium on March 23, 2023, during the 20th Annual ENETS Conference. The symposium, titled “Working Together to Improve Patient Outcomes,” discussed the importance of educating primary care physicians about neuroendocrine tumors (NENs), developing an optimal patient pathway, and the instrumental role of patient input in NEN research. The speakers included patient advocates and NET specialists who emphasized the need for collaboration and a shared language between patients and medical experts. The article provides detailed insights into the symposium’s discussions and the speakers’ key takeaways. The full article can be found at