Supporting the

Neuroendocrine Cancer Community

NET Patient Foundation and Royal Free Hospital publication featured in British Journal of Nursing

Jul 24, 2018

A publication on the prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues written by Catherine Bouvier (NPF’s CEO), Tara Whyand (Royal Free Hospital) and Philippa Davies (Royal Free Hospital) was recently featured in the British Journal of Nursing. 

Somatostatin analogues (SSA) are a common treatment for some forms of neuroendocrine tumours (NETs). Patients report a variety of side effects after starting these drugs, so in most cases they require a lot of nutritional input. An online survey was used to invite responses from patients worldwide to determine the extent of reported side effects. Patients were asked which SSA they were taking and how they rated the severity of their side effects.

The survey found that many self‐reported side effects from the use of SSAs were experienced more frequently than previous clinical studies or the patient information leaflets reported.

Thank you to all the patients who supported the research into this and to everyone who helped us collect data. 


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