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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

HELPLINE CLOSED TUESDAY 21ST JANUARY 2025

Our Support Helpline will be closed on Tuesday 21st January 2025, due to staff training. Normal services will resume Wednesday 22nd January 2025.

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Join our Team – Job Vacancies

15/01/2025 - NEW VACANCY - OPEN  Fundraising Manager -   SELECT HERE TO LEARN MORE AND APPLY.  

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Neuroendocrine Cancer UK Hero Awards Winners!

Neuroendocrine Cancer UK proudly launched the Neuroendocrine Cancer UK Hero Awards in September 2024, an initiative designed to honour the courage and…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Our latest update on PERT – Dec 2024

Our latest update on PERT  We have been working with our community and fellow charities to continue to seek solutions to current PERT supply issues.  Our…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Support Service hours during December

An update to the timings of our Support Services: December 2024

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Neuroendocrine Cancer Headlining the News

NOVEMBER 2024 01/11/2024 Urgent action needed to improve the survival rate of people with rare cancers, campaigners say Campaigners highlight the urgent…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

UK Government announces commitment to a National Cancer Strategy for England 

UK Government announces commitment to a National Cancer Strategy for England  Several weeks ago, Neuroendocrine Cancer UK, and fellow charities, co-signed…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

PERT Update

As some of you may be aware, we are working with fellow charities and patient organisations to ‘lobby’ and work with the government and other stakeholders…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Fair Market Value for Charities in Partnership Work

Charities and patient organisations, like Neuroendocrine Cancer UK, alongside individual patients, play a crucial role in optimising equitable patient…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot
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