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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Announcing the 2024 Pump-Priming Grant Winner

As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, and in collaboration with the United Kingdom & Ireland Neuroendocrine Tumour Society…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Join Us for Ruth’s 250th Daily Dip for Dave!

Can we get 250 people around the world dipping on the 15th of June? Ruth, the incredible wife of a neuroendocrine cancer patient, has been taking a daily…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Neuroendocrine Cancer UK: PERT UPDATE 30th May 2024

As you may be aware, over the last few months, we at Neuroendocrine Cancer UK, have been working with charity partners to address the urgent need to…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

SIRT Therapy for Neuroendocrine Tumours Webi-Natter Event – May 30th

- Neuroendocrine Cancer UK is thrilled to announce an upcoming Webi-Natter event focused on the recent news of NICE's approval of SIRT Therapy for…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Launch of Rareminds Wellbeing Hub and Rare Minds Matter Survey Results

- Launch of Rareminds Wellbeing Hub and Release of "Rare Minds Matter - Rare Disease and Mental Health 2023 Survey Results" We are thrilled to announce…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

NICE Recommends SIRT Therapy for neuroendocrine tumours 

We are delighted to share with you the news that NICE has recommended SIRT (selective internal radiation therapy) for the treatment of neuroendocrine…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Shape the future of Neuroendocrine Cancer UK: Complete our survey today  

At Neuroendocrine Cancer UK we want to ensure we continue to meet your needs and support you in the way you want to be supported. Please complete our…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Research Participants Needed – Online Peer Support in Long-Term Conditions

CommonGround Online Peer Support in Long-Term Conditions: A team at King’s College London has collaborated with individuals living with long-term physical…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot

Conversation Openers: Practical advice for healthcare professionals

Conversation Openers: Practical advice for healthcare professionals on ‘how’ to have open conversations about mental health with their patients  In 2022,…

Published: 2 years ago

By Leanne Talbot

Published: 2 years ago

By Leanne Talbot
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