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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

INCA President – Elect

We are delighted that Mark McDonnell, Chairman of NET Patient, Ireland, has been elected as the new INCA President-Elect. He will begin serving his…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Lockdown Update:

ENGLAND: Some of the rules on what you can and cannot do will change on 12 April. You can read the ‘COVID-19 Response - Spring 2021’ (the roadmap out of…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Neuroendocrine Cancer of the Bowel – Awareness Month

 This April we are supporting Bowel Cancer Awareness month and over the next few weeks we will be sharing information and support for those living with…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

You raised £1783.29 through Facebook in March!

Thank you to everyone who set up Facebook fundraisers, and to all who made donations through Facebook and Instagram last month. You raised £1783.29!! 🌸…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

 The NICE Supporting adult carers quality standard has now been published

 The NICE Supporting adult carers quality standard (QS 2021) has now been published. This quality standard covers the provision of support for adults aged…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Ovarian Neuroendocrine Cancer – The Facts

Ovarian Neuroendocrine Cancer - The Facts The incidence of temporary amenorrhoea or early menopause due to cancer or its treatments varies according to…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Neuroendocrine Cancer Research – Clinical Trials

RESEARCH SPOTLIGHT MARCH 2021 - CLINICAL TRIALS IN NEUROENDOCRINE CANCER. Patient and public involvement (PPI) in research is a very welcome and…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Complementary and Alternative Medicines

This week is National Complementary Therapy Week. It is an event about Complementary Therapies & the work & services offered by complementary therapists,…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot
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