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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Sheffield NET Centre of Excellence GEDNEN Course

Sheffield NET Centre of Excellence held their first Group Education for nutritional and dietary advice and symptom management in Neuroendocrine Neoplasms…

Published: 12 months ago

By Neuroendocrine Cancer UK

Published: 12 months ago

By Neuroendocrine Cancer UK

One Week to go to ENETs – INCA World Neuroendocrine Cancer Day webinar

ENETS-INCA Educational Webinar for World Neuroendocrine Cancer Day 2025 ENETS and the International Neuroendocrine Cancer Alliance (INCA) warmly invite…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Pancreatic Enzyme Replacement Therapy (PERT) Supply Update – November 2025

As many of you will know, we have been working alongside charity partners on the issue of PERT supplies to the UK, since issues were first reported to us…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Raising awareness of neuroendocrine cancer for GPs

Raising awareness of neuroendocrine cancer for GPs Neuroendocrine Cancer UK took to the stage at the recent Best Practice Birmingham event to shine a…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

MEET (some) MEMBERS OF A NUCLEAR MEDICINE TEAM

In October, 6 members of our patient community attended The Christie Manchester for a nuclear medicine treatment called PRRT (Peptide Receptor…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Ambassador Alan represents the neuroendocrine cancer community at a training event with pharmaceutical company, Novartis

Back in August this year, we invited Alan to be ‘a patient voice’ representing the neuroendocrine cancer community during a training event with the…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Volunteers needed for INCA “Patient Insights into Clinical Trials” videos

As many of you know, we are part of INCA (the International Neuroendocrine Cancer Alliance). Our senior patient advocate, Kate Quirk, sits on the INCA…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Welcoming Lisa Walker as the New CEO of Neuroendocrine Cancer UK

We’re delighted to announce Lisa Walker as the new CEO of Neuroendocrine Cancer UK. Lisa brings over 20 years of experience in healthcare and charity…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Taking Control of Cancer Podcast: Episode 31: Uncovering neuroendocrine cancer

Taking Control of Cancer is a podcast series from the North East London Cancer Alliance to help overcome common cancer myths, fears and barriers. The…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK
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