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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Nutritional and vitamin status in patients with neuroendocrine neoplasms

Symptoms of gastroenteropancreatic located neuroendocrine neoplasms (GEP- NENs) are often related to food intake and manifest as abdominal pain or…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Leicester Patient Education Event – 28/02/2020

We support patient education events across the UK which are open to anyone affected by Neuroendocrine Cancer. These events are free to attend and provide…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

We are changing our name to…

We are changing to better reflect our community, building on the foundation that has been laid down over the last 17 years – we will also be launching a…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Scientific publishing is a rip-off. We fund the research – it should be free

Those who take on the global industry that traps research behind paywalls are heroes, not thieves. After my cancer diagnosis this year, I was offered a…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Neuroendocrine Cancer Awareness: Bournemouth patient Carolyn Evans and Brighton patient Brian Rubin

Neuroendocrine Cancer Awareness: Bournemouth patient Carolyn Evans and Brighton patient Brian Rubin Neuroendocrine Tumours (NETs) are relatively rare…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Craig Speirs – Faces of NETs

This is our amazing NET Patient Foundation ambassador Craig Speirs. Craig is a 39 year old married father of two and he wants to share his brave and…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

The Great Big Fundraiser Bash – North Yorkshire

Saturday 8th February 2020 - 7pm til late Live Music, Food, Silent Auction, Charity Prize Balloons & Grand Draw! [npfButton size=“small” text="Click here…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Job Vacancy at the NCUK – Cancer Support Nurse

An exciting opportunity has arisen for a registered nurse to join our core staff at the Neuroendocrine Cancer UK (formerly NET Patient Foundation). …

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

I feel like I’m sitting on a time bomb

‘I feel like I’m sitting on a time bomb’ – Kath reveals how incurable cancer affected her life. A woman with incurable cancer has spoken of how the…

Published: 7 years ago

By Neuroendocrine Cancer UK

Published: 7 years ago

By Neuroendocrine Cancer UK
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