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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

How a rare disease diagnosis can lead to mental health problems

With more than four in ten rare disease patients affected by depression, and significantly higher rates of illnesses like anxiety, mental health problems…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation Attends The INCA Global NET Patient Summit

This years summit was a collaboration of 26 member organisations from 22 countries, with a single goal to work on key strategic pillars that will promote…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation Attends The British Society of Gastroenterology Annual Conference

"You go through the stages… denial, anger, through to grief for the life that will never be the same once diagnosed with a NET to a ‘kind of’ acceptance…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Charity Golf Day in memory of Andy Cripps raises over £2,000

Andy Cripps passed away in January 2011, aged just 48, after a late diagnosis of a poorly differentiated neuroendocrine tumour - just a few weeks after…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation Attends ACRONET 2019

With over 200 delegates, from across the UK and Ireland, ACRONET 2019, held 6-7 June, was a busy and interesting educational event.  This now annual…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Review of Treatment Options of Psychiatric Symptoms in a Case of a Functional Neuroendocrine Tumor

Treatment of psychiatric symptoms in syndromic Neuroendocrine Tumour patients has been found to be challenging. The article below suggests that carcinoid…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Economics of Gastroenteropancreatic Neuroendocrine Tumors: A Systematic Review

Cost-effectiveness and budget impact considerations are inherent  in the  the decision-making process for treatment reimbursement. A systematic review of…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Mike’s 625km End to End Cycle for NET Patient Foundation

The NET Patient Foundation team would like to say a huge thank you to Mike and his wonderful cycling team for taking part in a 625km End to End Cycle and…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Neuroendocrine Cancer Patient Specialist Centre Survey Involvement: Shaping Care for the Future 

**PATIENTS LIVING IN / OR RECEIVING TREATMENT IN THE UK ONLY PLEASE** The NET Patient Foundation is working with Quality Health and ENETs to pilot a new…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot
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