No deal Brexit could have detrimental impact for four million people in UK living with a rare disease
Experts have warned that a ‘no deal’ Brexit will result in the exclusion of the UK from the 24 European Reference Networks (ERNs) that were established to improve the care of patients bearing the lifelong burden of a rare disease, which require highly specialised diagnosis and treatment.
The UK and the Republic of Ireland run the only formal national programme for liver transplantation in patients with neuroendocrine tumours, and evidence shows those transplanted ...
Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. ...