Supporting the

Neuroendocrine Cancer Community



Gathering data is vital, and we get involved in a number of research projects both Nationally and Internationally, ensuring that the patient perspective is heard. Below you will see a snapshot of some of our work. Thank you to each and every one of you who completes a questionnaire or responds to a survey. It is SO important to be able to share your views – to bring your voice to a platform where it can be listened to and acted on. If you think you can help or you are willing to take part in any of our research projects then do let us know.

Barriers to Diagnosis Report

This report is focused on the insights into the patient pathway for those diagnosed with NC.

COVID & My Care Report

This report offers an insight into healthcare and social impacts of Covid-19 on the Neuroendocrine Cancer Community in the UK.

Widening the NET

This report is focused on improving outcomes for patients with Neuroendocrine Cancer in Scotland it outlines ‘ambitions’ and ‘actions’ to ensure that progress continues to be made in Scottish NET care.

NCUK Where is Chapter 10?

One-Size Fits No-One: How can we improve the impact and outcomes for patients who follow a less common pathway?

Delays and Routes to Diagnosis of NETs

This study aims to address the symptoms prior to diagnosis of people with known neuroendocrine tumours and also the involvement of healthcare providers prior to the diagnosis.

Unmet Needs in the International Neuroendocrine Tumor (NET) Community

NCUK and Royal Free Hospital publication featured in British Journal of Nursing

Epidemiological characterisation of NETs

British Journal of Cancer publishes first in-depth epidemiological characterisation of NETs in the UK.

Patient Experience Survey

In 2014 NCUK (previously NPF) commisioned Quailty Heath to undertake a survey of people who were undergoing treatment for NC.

About Us

Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.


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