Tom was 27 when a pancreatic NET changed everything. For seven months he had been told his pain was health anxiety and too many fizzy drinks. ...
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Everyone’s experience of neuroendocrine cancer is different. Here, families, friends and carers share their personal stories, offering insights into the challenges, emotions and everyday realities of supporting someone with neuroendocrine cancer.
Tom was 27 when a pancreatic NET changed everything. For seven months he had been told his pain was health anxiety and too many fizzy drinks. ...
Written by her daughter Rhiannon and her dad, Olwen's story begins with a scan in May 2019 to investigate internal bleeding. She was diagnosed in August ...
Name: Ranjpreet Supporter: Father has oesophageal Neuroendocrine Cancer. Ranjpreet's Story: My father has been diagnosed with NET of the oesophagus which is rare and I’ve not ...
OUR EXPERIENCES OF LIVING WITH NEUROENDOCRINE CANCER My husband Ian was diagnosed almost exactly nine years ago with Neuroendocrine Cancer with liver metastases. ...
EXPERIENCES OF PRRT We were very grateful to be given the opportunity of fighting Ian’s Neuroendocrine Cancer liver mets through PRRT. Ian had been diagnosed in ...
Peter helped found the patient support group, ‘Living with Carcinoid’, with his late wife Liddy in 2000. Liddy (Oldroyd) was an outgoing and successful TV comedy ...
NCUK have invited me and my lovely Dad to share our story of his battle with this awful disease over the last 2 years, as part ...
Hello, I am Leanne. A mother to a 3 year old, living in Warwickshire. In 2016 I saw an advertisement for a position at Neuroendocrine Cancer ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.