A site by Ronny Allan – Living with Neuroendocrine Cancer

By: Neuroendocrine Cancer UK

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

Getting your Trinity Audio player ready...

Welcome to the website of Ronny Allan who was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome). On this site, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make. More detail of the background to Ronny’s diagnosis and treatment can be read by clicking here.  In addition, Ronny offers hundreds of articles on many different subjects, all meticulously researched from the most eminent sources. He also occasionally writes about other cancers in the news and related general cancer issues. Factual, educational, positive and the occasional pinch of humour, he also uses this site to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles to ensure maximum awareness.

Click here to subscribe tp Ronny’s blog.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


Read more stories from people 
affected by neuroendocrine cancer, 
sharing their journeys, hopes and advice.

In this episode, Lisa is joined by Dave and Stephanie, parents to six-year-old Elliott and three-year-old Oliver. Dave was diagnosed with neuroendocrine cancer just one month ...






Published: 4 days ago

By Beth Chesser